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Thyroid Disorders Community
26k Members
393685 tn?1425816122

Who are you with THYROID???

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

NikkiP/Stella
289 Responses
314276 tn?1235084823
I came to MedHelp when I was dx w/PCOS and hypothyroidism in late 2007. I have been struggling with hair loss and weight problems.  I love this forum as it brings so much knowledge about different things. Hope everything goes back to normal. I dont even want to be seen outside my home, I feel like everyone is looking at me.  My husband is very supportive, but I just feel that he would not want to be with someone struggling with hair loss.  I dunno.  Hopefully my hair grows back where it has thinned out.

Thanks for putting this ? out there.
Avatar universal
I was just bumming around the web looking for info on Hashimoto's and on the muscle aches I was having and found this forum, after following the advice of some of the members, my condition has improved, so now I visit each day, If I can offer some help I try, I think it is a great place to chat with folks who have the same problems and rids you of the feeling that your alone with these symptoms. Thank You FTB4
519035 tn?1348279373
I was dx'd with hashis, hypot, and pcos. I am flip flopping probably due to stress. I am doing much better with a 1.0 Tsh. Thanks for all your help Stella:)  I remember up to 2006, and finally making progress. Hoping I can land a better job now.
168348 tn?1379360675
I did a search for thyroid nodule and FNA biopsy.  I went for a routine physical and they found 2 nodules by chance .. the rest is history for now after a partial thyroidectomy with two benign nodules removed and then finding two very small micro papillary cancers elsewhere in the gland that are now gone.  The other side never began to work again, so I'm on Synthroid for the cancer supression as well as to live.  It took a good 10mos to get the meds sorted out and then just this Winter I had a severe Vit D deficiency which is doing much better now.  I'm feel well now and have 1/2 the other side of the thyroid intact and ultrasounded routinely and all is stable.

This is a wonderful community ................. I don't know what I would have done without it.  My diagnosis to surgery date was 9 weeks .. and those were longest 9 weeks in my life.

C~
Avatar universal
I was Googling for calcium in urine and it brought me to this forum and what's coincidental is that I use the Tracker for Fibromyalgia and and autoimmune disease I have. Right now I have Hyperparathyroidism and will probably be having a parathyroidectomy in about 3 weeks.   I have heart disease which resulted in a triple bypass in 07, hypothyroidism, CREST(a less aggressive form of scleroderma), fibromyalgia, controlled hypertension and thats the bulk of it.
I use the trackers here and am just getting used to using the forums.
219241 tn?1413541365
I had looked at a few thyroid forums, but found nothing for Australia. Did a google on my condition and saw MedHelp.
  I do have issues with parathyroids.
Had Follicular Adenoma in left lobe, removed May 07
Hurthle cell Adenoma with changes in right lobe, removed Dec 07.
I have Hashimoto's even though I had my thyroid removed totally.
I am happy to be alive though, and that's the main thing.
514523 tn?1215836267
After being told by my diet doctor I was hyperthyroid and needed to follow up with my primary doctor,Came to Medhelp to see what it could possible be.  Found out I was graves with two nodules 1 solid and 1 too small to tell.
2 fna's inconclusive results. I had right side of thyroid removed 22 years ago due to 3 benign nodules. Now Im left with the option to get a core biopsy or thyroidectomy of my left thyroid. And after being denied by my medical insurance of a second  opinion for a core biopsy . I am being referred to an Endocrinologist at the UCLA Medical Center  which I am so happy about! Im hoping if I have to have surgery again it will be the Minimally invasive thyroidectomy. I also think that they dont wait  until your hypo to give you replacement thyroid medication . So thankful to this forum, Its been so helpful for me.....

So Thank you all.............
649848 tn?1534637300
COMMUNITY LEADER
I was dx'd with hypothyroidism in June 08 and found MH while searching for info that might help me feel better because my pcp was just NOT getting it.  He even refused to do some of the necessary testing because he insisted it wasn't needed and that synthroid was going to make everything "all better".  Also battling weight issues and again, no help from pcp.

Long story short - Using info found here, I managed to get a referral to an ENT who suspected Hashi's, in Oct 08 did further testing to confirm; with US uncovering multinodular goiter.  ENT ultimately referred me to endo, who changed my med.  I'm now taking generic levothyroxine and he added 10 mcg cytomel daily.  

I also have pernicious anemia so as long as I get my B12 shot every 2 weeks and take my thyroid meds, I'm feeling better than I have for years, in spite of still struggling with the weight issues.

Thanks to everyone here who did and still does provide such a lot of information for me to be able to get the treatment I needed/deserved.  
393685 tn?1425816122
I found med help on a search too. I was already RAI's for Graves disease back in 2004 and I struggled trying to find out answers why I felt so ill after it. I was googling "burning tongue" and thyroid and found Med Help. I lurked for many months before posting for help. Two members step up and gave me my first clue that this was all realated to thyroid. That started my endless search for answers.

At this time I am grateful that 100% of my hypo symptoms are gone. Even though I became OCD on Thyroid research for myself I learned so much about all the hormones connected together and my health has never been better.

I too thank everyone for being a support for me. And I hope I can return all help back for many years to come.

This is what is about for me now, not letting others suffer as long as I did - not being alone and not knowing why I was so ill.

Maybe even save some patients a bit of cash too and not go through all the expense I did - when simple testing was what I needed to steer me correctly for better health.

231441 tn?1333896366
I was diagnosed with PCOS and hypothyroid in 2000 & parathyroid issues.  No known cause, but possibly autoimmune (though antibodies were low I do have other autoimmune stuff going on).  Possible pituitary involvement (pituitary adenoma). After a few years on rocaltrol (bioactive vit D) the parathroid stuff settled down on it's own.

Just had a baby 2 months ago.  She is very healthy - thank goodness after a difficult pregnancy, which included a laparatomy for what turned out to be appendicits at 3 months followed by (but probably caused by) amoebiasis.  I also had gestational diabetes.  Been hanging around medhelp for a couple of years now.  Like the support and I like to give advice when i can.

When i got treated for thyroid it's like the lights came on again. When I added dessicated (armor) it was like the world had color again.  it took me 2 years of feeling terrible and gaining weight before I got diagnosed.  After about 3 years my doctor left and I had to find a new doctor.  She said she didn't think I had hypothyroid and cut my meds.  WHen my TSH skyrocketed she had to admit she was wrong.  Anyway, I didn't hang around and found my current doctor of about 5 years who is competent and caring and knows my history.... though there are ups and downs... but he handled my pregnancy superbly and I have my beautiful baby girl as a result.

Anyway, I hate to think of others suffering from what is normally a very treatable condition.... and hope my experiences can help someone....
620923 tn?1452919248
Hi...I was researching info on another condition I was dx with and joined bcuz I could also get info on Hashimoto's which was dx shortly after my other one.

There are so many forums out there, but everyone here is so helpful and friendly.

And like I said there are so many forums within this site that I can look up info on my father's condition, or my mom's ect.

With my hashi's I was dx'd but not put on meds and it was the member's here that got me on the right track for testing and I was able to get my PCP to redo labs and finally after a yr and a few months was placed on meds.

Thanks!!  : )
"selma"
793305 tn?1493929118
I found this site thru the help of my daughter.  She's an x-ray tech/massage therapist.  I have just had my thryoidectomy a week ago.  My thyroid was in disgusting shape apparently, per the surgeon, due to Hashimoto's thyroidits.  I had a nodule that was cancerous though not as bad as the Dr expected.  He did, however, remove a lot of lymph nodes.  That made me nervous, but they all came back as reactive to the Hashi's and not cancerous.  At this point they do not believe that the cancer has gone very far.  He took my thymus as well.  That was ok, I guess, as I didn't even know that I had one of those.  : )  So I am 10 days in to having no thyroid and I am not on any meds.  I go to see the surgeon again on Thursday for a follow up and then go the endocrinologist to discuss radio active iodine therapy.  I am more uptight and worried about that than I was the surgery.  Gosh I just want to get thru this and get it over with.  Though to be honest, I have yet to really hit Hypo hell.  I thought I'd be well on my way and I really don't feel much other than getting tired easily.  I had that with the Hashi's.  Anyway, being able to come in and read other peoples stories helped get me thru the surgery.  It went well.  Incision is healing and I don't have a lot of other issues at this point. Thanks to all of you.  The support on this site is amazing.
549681 tn?1229728099
I stumbled on this board while looking for answers.  A random blood test showed I was severly hyperthyroid, but I had no symptoms.  Is there any other part of the body that Drs. feel the need to kill because it is working too well?  Several months later, I began having symptoms of T3 toxicosis.  I was finally diagnosed with toxic adenoma by a process of elimination.  Not Hashi's, not Graves', not multinodular goiter, so it must be a big hot nodule.  I had RAI 12/08, finally went hypo 3/09.  I'm doing well on low dose Levoxyl.  So I guess the RAI killed the nodule, but not the suppressed thyroid tissue and it has started working again.
To all members  - Thank you!  You have been a lifeline for me to hang onto!
280485 tn?1249017444
I guess now I'll always be described as "hypothroid".  But I don't like that term... not even one little bit!  I have NO thyroid and it's very different (at least in my estimation).  My thyroid happened to have cancer and I had to let go of it.  I let a surgeon cut it out.  It was an accidental dx and a quick thyroidectomy with little complication.  

I barely even have a scar.  And it's easier to forget that way.  I choose not to dwell on the cancer or its treatment.  I'm clean and that's that.  A speed bump at best.  I don't even like to acknowledge that it truely is a reality on a medical form...  And if pressed, (in real life...) I'm uncomfortable with it, but I'll talk about it... Especially if I like you.

But don't call me hypothroid, because I'm not.  I'm thyroid-less.  And I think there's a major difference.  I'd finally call me "stable" on meds now, but it was a long journey.  And there's no book about living without a thyroid.  I know of several here on the board and others in my life that have gotten on meds and "hopped" (pardon the Easter pun) away very happily with little or no adjustment to those meds...  Regretfully, I was not one of those.  I spent over a year switching from dosage to dosage, med to med, looking for the correct one for me.  I've been to H-E-double toothpicks and back, and have come out on the other side.  FINALLY!

I check in here once in a while to see if I can help someone else, give a few words of comfort, and maybe remember, in even just a small way, how lucky I am.

Because here I found real help and answers to questions I found too silly or scary for me to write (out loud) about.  But others did.  And it really helped me when I really needed it.

I thank all of you for that.
770296 tn?1244389441
I found this site after doing a search on symptoms I had been having for ages
and very very glad I did as truly thought I was losing it!
Docs had told me it was basically depression that was the problem though
now been told have T3 toxicosis? (am I right that this is hyper?) I have hypo
symptoms and last test came back with antibodies elevated, I see endo next
week and am hoping to be put on some form of meds as still not had anything
despite being hospitalised 2wks ago thinking I was having a heart attack.

This site has been great and everyone friendly.

Thanks again
Avatar universal
I came to this site by accident when trying to find information on thyroid nodules.  I was told I had to have a FNA on one of 2 nodules I have. Which scared the heck out of me. Just reading some of the post from others that had already gone through the process helped calm me down and to know what questions I should ask at the time.  I don't do a lot of postings, but I come on here everyday to learn!!  Thanks to all of you!

BB8911
Avatar universal
This site has been a wonderful source of information, thank you!
I came across the site when trying to find information about the link between adrenals and thyroid. I have had symptoms of Hypothyroidism from childhood and have a family history of both Hashimotos and Graves. Even with the family history of thyroid disease
(of the 5 female children of both my grans all five have thyroid disease, and of their children 3 of us have been tested and have thyroid disease) I have been battling to get treatment by doctors. I live in South Africa and the laboratories have only recently revised the reference ranges to 0.4 - 4.0 uIU/ml. My biggest frustration is with doctors,
my doctor barely even glanced at my tests, only looked at reference ranges - if the lab said its high or low he discussed it with me. He didn't look at what was in the high limit or low limit, didn't ask how far I was in my cycle ... O.K enough ranting. The strange thing about the reference ranges is that if you are hyper you get treatment straight away but if you are hypo you have to be over 5 for them to treat, another interesting tidbit is that Hypothyroidism is considered as a chronic disease and has to be treated as such according to our medical aids... yet here I sit can't see an endocrinologist without a doctor referral and the doctor won't treat even though I have High Thyroid Antimicrosomal Antibodies because my reference range has dropped to 2.76 (which I think is because of my adrenals) ... All I can do is sit and wait for that sunny day when a doctor takes my problems seriously.
Avatar universal
diagnoses with hypo after chemo, i thought i would get better after i stopped the meds, but i am still having to take eletroxin and i feel horrible and tired all the time, i was on another medhelp forum for another problem, i will read threads over here, but i never post, i am still learning about this illness, i do not have much experience to share
155701 tn?1230050701
I found this website in 2006 while searching for symptoms of something else.  When I was diagnosed with hyperthyroidism and had then the resulting surgery, this community helped me more than anything else!  I was scared because I live alone and was so sick from the hyperT, and so many of you sent me messages to let me know I was not alone.  MedHelp has been a godsend in more ways than I can count.  I find that the community forums are better than the expert forums because you get to hear what others with your condition go through and what to expect.  Thank you to all the wonderful and brave people here.
368844 tn?1262322947
I found this site the day I came home from the hospital after my TT.  I was looking for info on the bandaging of my scar and received great advice.  When I found out I had cancer (really surprised me), this was a great resource and support group.  I have had such great advice and help.  Now I am dealing with cysts and have found medhelp to be so awesome in my questions.  I find it so comforting to know that "I am not alone."  The stories and assistance that everyone shares have really made me feel like I have friends who know what I'm going through.  Thanks guys!!  Love ya tons!
Avatar universal
Now going to look on the site for other peoples experiences swithy
870456 tn?1272562204
I was searching for someone that had RAI for Graves disease about the same time I did. Sure enough my search came to Medhelp, and a post made by Stella.  
363281 tn?1518219421
I found this site through your profile. I have been told by some docs that my thyroid is fine and by others, that is low, so, I don't know, tests do not show anything, but, taking my temperature under my arm first thing in the morning shows a very low number, so, I say I have hypo.

I am in to natural medicine and do so much research, I could write a book, but, it is an area of interest to me, and I feel that if we do not take care of our own health, no one will.

I look forward to sharing with everyone here and learning ways to help my thyroid.

Have a wonderful day.
Susie
Avatar universal
I came here initialy due to Graves Disease.

I came back because I had RAI 11 days ago and I feel so hyper it's unreal - I thought this stuff was supposed to make you hypo.

I have lost over half a stone in weight in the past week, can't sleep, had a panic attack, got the frequent bowel movements again, can't stand the heat and I'm itching all over.

I left a mesage with the receptionist at my doctor's surgery this morning but the doc didn't get back to me - surgery now closed.
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649848 tn?1534637300
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