Who are you with THYROID???

[stella5349]

As a refresher for members and an invitation to ALL -

How did you come to the thyroid board here at Med Help?  Let us know what conditions you have and what you went through so far.

Do you have a parathyroid disorder? Do you - or did you - have cancer and have had your thyroid removed? Are you autoimmune and struggling?

So many - visit here and a thread like this is so important to know what's up.

We as Leaders and members would like to know what has brought you to this board so we and others can direct you to the best resources available.

Thanks and Happy Health!

NikkiP/Stella

[TLull]

Hi Everyone
I found this site doing my research on thyroid.
I was feeling really weak, fast heart rate, shaking ( I fell like an earthquake) and sweating. My dr. thought it was depression, but also did a blood test. My test came back and showed my TSH .006 SO now she thinks its hyperthyroidism. Now the Dr. has took more blood tests for the results on T3 and T4. Can anyonne tell me what is going to happened next? How long will it take to feel better?
Thanks bunches

[ryl74]

I'm so glad that i found this site. I'm new here and reading some of the discussions & topics, i learned a lot, even though i dont understand some terms.
i also want to share my experience, and sharing it can make me feel better and lessen my burdens... 8 years ago, i felt a lump on the right side of my neck. I checked it with the doctor, she told me "that's nothing! it will go off!"... after 3 years, the lump was still there. i went to another doctor, i had a lot of blood test & ultrasound....all test was good, doctor told me no worries.... after 2 years, i went to another doctor... this time i did not tell him about the lump on my neck but w/ complains:1. breathlessness or difficulty of breathing, 2. tiredness, 3. palpitation & 4. backpain... he immediatelly told me that i have problem with my thyroid... I did some blood tests & ultrasound. on the ultrasound, i was suggested to do FNA or biopsy... with the word "biopsy" , right away cancer goes into my mind. and for me cancer means DEATH... i felt so down & as if i cant get up anymore. i was thinking of my 2 kids (15 & 10 y/o). i've been crying eversince. the doctor told me that i will undergo surgery & he reffered me to the specialist or endo. My endo requested me to do the FNA but unfurtunatelly it was unconcludable... so there's no other option but to do surgery. my endo expained to me that thyroid cancer is NO BIG DEAL coz its curable & Europe has the best hospitals. so all my worries were gone. he also explained that during the operation they will do the biopsy on the thyriod that was removed, & if they see that there is something wrong with it, automatically they will also remove the other. if only 1 thyroid removed, i'll stay at the recovery room for 3-4 hrs but if TT, i will stay at the ICU for 24 hrs. Last july 27, 2010, i had my operation, when i was at the recovery room & noticed that i was there more than 5 hrs, i already knew that they removed both of my thyroid. i was not even shocked when my endo told me that the tumor they removed was malignant. i already surrendered all my worries to the Lord. On oct. 25, i will undergo RAI, for the follow up treatment of my cancer. Fighting the battle of cancer is not that easy, but with my TRUST IN HIM, i know He will always guide & protect me.
HAVE A GOOD DAY EVERYONE!

[neoB]

Does anyone else get mirgraines if you miss your dose of levothyroxine for a week or more? I get tested every 2-3 months b/c im taking 175 mgs of it. sometimes they make me stop it for a week and i get super sick. Mirgraines so bad it hurts when i breathe to the longer w/o panic attacks. I know it seems odd, but has this happened to anyone? I haven't a clue about my levels but they are ridiculously high. I am always looked at like I'm an oddball :)....... I've had the lower dosages and worked my way up... i'm hoping it won't have to go any higher b/c frankly I can do w/o the side effects :S....

[carandbri]

I too am new to this forum and the whole thyroid disorder experience.  I was diagnosed in July 2010 with Hypothyroidism (TSH of 10.97) by my primary care and she prescribed 25mcg of Levothyroxine.  I made an appointment with an Endocrinologist for the 6 week mark and he had a TSH/Free T4 test done which showed an improvement of my TSH, which was 6.09; my Free T4 was 0.69 and he diagnosed me with Hashimoto's Syndrome.  

My experience has been that I noticed things getting slower and weight creeping on over the last couple of years but since I'm 46 I just chalked it up to getting older and hormonal changes.  Since starting the medication; things have just escalated.  The first medication I got was generic and I did find help on these boards by reading that generic Levothyroxine can cause a lot of side effects that a brand name might not.  So, I had the prescription changed to Synthroid brand and that helped a lot.  My Endo increased the dose to 50mcg, which I've been on for about 30 days.

I only feel slightly improved, if at all.  Mostly there is just the ever-present feeling of lethargy.  I've read that depression can be a side effect but, for me, even though I feel depressed in the sense that I don't feel vibrant any longer, it is more a lethargic feeling and a feeling of just giving up trying because things that used to be easy are too hard (ie, exercise!)  So, this kind of feeds a snowball effect of feeling badly about myself for giving up but not having the energy to pull myself up by my bootstraps and get going to change things.  I am desparately hoping that as my journey continues my energy level will return and I will be able to turn things around.  I feel like I am sitting on the sidelines of life and I don't like the feeling at all.  I want to feel vibrant and alive again.

[Jackie2413]

I have justed started my journey in 4/10.  I am a person who never goes to the Dr. unless for a physical and I am usually running past due when I do go.  I had to give in...I was feeling as though food was stuck in my throat, was having trouble breathing.  Went to the Dr. in April told him of my problems and thought I was having problems with alergies.  He gave me medicine and said I was due for a physical so come back in May.  Went back in May still having the same problem, feeling restricted in throat area.  The Dr. made an appointment for me to see the ENT Dr.  Finally got an appt. in July with him.  He tested me for allergies to externals and I had no reactions.  He sent me out the door with meds for Gerd and flonase for sinuses.  This medicine did not make a difference, but I kept taking it.  Went to NJ to visit familyin August. On 8/16,17 and 18th I was experiencing sharp pains in my eys, just on movement.  Finally on the 19th when I got up I looked like I got in a fight.  Got back home to NC on the 27th with an extreme headache.  Had to given in so the next morning, Saturday, I had to call the eye doctor.  I went to see her and after seeing me she said I think you have an autoimmune disease........so my journey begins.

On 8/26 saw the Neuro-optamaligist and she checks my eyes and tested me for thyroid eye disease

TSH .01   (range .45-4.5)
TSI  322  (range 0-139)
TRab 5.81  (range .0-1.75)

This dr called me the next morning, wow someone that cared and was trying to get me help

Finally get to see my Endo. on 9/7 , he is wonderful, but talks like I know what is going on.  He tested my TSH and FT4 and FT3

TSh .03  (range .34-5.66)
FT4  2.67 (range .52-1.21)
FT3 6.36  (range 2.20-3.80)

He has put me on Tapozole 20mg

The weird thing about this all is that I always considered myself to have an extremely slow metabolism, always cold, struggle with weight management, low blood pressure, tired etc.  Now that this has happened my heart is crazy, I get the gitters, always hot, sometimes chils, but my muscles are weak.  I try to play softball last week and when I tried to run my legs just quivered and I thought I would collapse I also feel like I am in daze.

I stumbled across this board as I am trying to understand the autoimmune disease.  Are there foods that help, what can I do to make a difference with my siuation.  I am now afraid of getting other autoimmune diseases.  I can't really handle this one so I truly do not want another.  Please share all suggestions  Thanks

[logansrun]

I am looking for people who had their Thyroid gland taken out? No Cancer for me just a very large goiter that had to come out along with the thyroid(it wad all intertwined). I have had a two and a half year hell ride since the TT. Hypoparathyroidism and Sever Hypocalcemia and the list goes on.
It's definately different! and not in a good way! So if you have had a TT give me a shout! I'd like to ask you some questions.
meanwhile I'll keep looking !