Aa
keeping my levels suppressed
Hi all can anyone help ---I have had a total removal of my thyroid due to having Hurthle cell carcinoma and was placed on T3 meds until i had further treatment now i have had treatment i have been placed back on the T3 to keep my functions suppressed for a further 6 months making me Hyper i feel well just cant cope with being so tired all the time and falling asleep when ever i can--just wondering if anyone got suggestions of anything i can take to help the tiredness 6 months is a long time to be feeling like this
That is very usefull info thanks I would like to have some of that material to take to my doctor in uk, you are right gimel in this life you have to push for what you want to make you well lol I MEAN in a nice way to hash and the doctor wont help at all.I will find out a bit more about Dr skinner and see if he can help but I am in london and cant aford to pay private so its all down to NHS what they will pay for your treatment any help or fact that i can take along to him will be very greatfull for kind regards Nat
Sorry, I meant to say in the first paragraph, "That's more likely a symptom of being hyper."
I understand that tiredness can be associated with both hypo as well as hyperthyroidism. The reason I asked about the possibility of hyper symptoms, is the large dose of T3 coupled with kazza's mention that "the only other syptoms is that i have lost some weight of which i am pleased about". That's more likely a symptom of being hypo. Further testing will reveal her actual status.
kazza: Since you are in the UK I am aware of the difficulty of getting adequate testing and treatment there. I thought you might get some good info from this.
IMPRESSIVE GOOD THYROID NEWS!
After a grueling week by the United Kingdom’s General Medical Council (GMC) , it was decided that the UK’s most renowned thyroid practitioner, Dr. Gordon P. Skinner, should have all his restrictions lifted and his Fitness to Practice restored!
On November 11th, 2007, the GMC had decided that the beloved Dr Gordon Skinner was not fit to practice, simply because in 2005, he dared to listen to and dose by a patient’s clinically-presented thyroid symptoms rather than her TSH labwork–the latter which fell in the erroneous normal range. Even more dastardly, felt the GMC, Skinner was going to treat the patient without a referral letter from her GP, and may have failed to contact the GP. Heaven Forbid!!
Says a recent statement from TPA-UK:
The GMC have agreed that Dr Skinner was not acting dangerously in initiating treatment with thyroid hormone replacement for those patients who had normal thyroid function tests but who suffered several symptoms and signs of hypothyroidism. They also agreed that for those patients who did not do well on levothyroxine-only therapy, the use of natural desiccated thyroid extract (i.e. Armour Thyroid) was a safe and effective thyroid hormone replacement that doctors could prescribe, even though it remains unlicensed. This is a precedent - and one that the British Thyroid Association are most definitely very unlikely to be happy with.
One additional bit of info for you. One of our UK members that was successful in getting the testing and treatment she needed told us this.
"What I have learned from my experience is that you have to go to the Dr's office and TELL THEM WHAT YOU WANT and to go backed up with knowledge. You have to tell them that you have done your reading and looked into your condition and care about the long-term treatment of your health and thyroid. If you fight for what you want, you will eventually find someone that is happy to go along with your wishes. But we all have to take charge of our own health, right?"
It would also be good to take along copies of material about thyroid issues, and references to scientific studies that support the recommendations that are in disagreement with the standard UK practices. Printed material has more impact than just telling them about something you read on the internet. If you would like some of that material, members can provide whatever you need.
kazza: Since you are in the UK I am aware of the difficulty of getting adequate testing and treatment there. I thought you might get some good info from this.
IMPRESSIVE GOOD THYROID NEWS!
After a grueling week by the United Kingdom’s General Medical Council (GMC) , it was decided that the UK’s most renowned thyroid practitioner, Dr. Gordon P. Skinner, should have all his restrictions lifted and his Fitness to Practice restored!
On November 11th, 2007, the GMC had decided that the beloved Dr Gordon Skinner was not fit to practice, simply because in 2005, he dared to listen to and dose by a patient’s clinically-presented thyroid symptoms rather than her TSH labwork–the latter which fell in the erroneous normal range. Even more dastardly, felt the GMC, Skinner was going to treat the patient without a referral letter from her GP, and may have failed to contact the GP. Heaven Forbid!!
Says a recent statement from TPA-UK:
The GMC have agreed that Dr Skinner was not acting dangerously in initiating treatment with thyroid hormone replacement for those patients who had normal thyroid function tests but who suffered several symptoms and signs of hypothyroidism. They also agreed that for those patients who did not do well on levothyroxine-only therapy, the use of natural desiccated thyroid extract (i.e. Armour Thyroid) was a safe and effective thyroid hormone replacement that doctors could prescribe, even though it remains unlicensed. This is a precedent - and one that the British Thyroid Association are most definitely very unlikely to be happy with.
One additional bit of info for you. One of our UK members that was successful in getting the testing and treatment she needed told us this.
"What I have learned from my experience is that you have to go to the Dr's office and TELL THEM WHAT YOU WANT and to go backed up with knowledge. You have to tell them that you have done your reading and looked into your condition and care about the long-term treatment of your health and thyroid. If you fight for what you want, you will eventually find someone that is happy to go along with your wishes. But we all have to take charge of our own health, right?"
It would also be good to take along copies of material about thyroid issues, and references to scientific studies that support the recommendations that are in disagreement with the standard UK practices. Printed material has more impact than just telling them about something you read on the internet. If you would like some of that material, members can provide whatever you need.
I still don't see listed any Hyper symptoms.
Tired and falling asleep at any time are more consistent with Hypo.
However that IS a HUGE dose of T3.
Tired and falling asleep at any time are more consistent with Hypo.
However that IS a HUGE dose of T3.
By "okay" for the additional tests, I assume you mean that they were within their reference ranges. That does not mean that is really okay for you. The ranges are far too broad. If you will post those results and reference ranges members can comment further.
Sorry by TT i mean total Thyroidectomy -yes treatment i mention RAI Vitamin D, B12, iron, and ferritin.are all ok had recent bloods along with calcium---Many Thanks for all your help
That is a large dose of T3. I understand the doctor's intent. I have no experience with TT, but I wonder if you need to go that far in suppressing TSH, to the point of having hyper symptoms. Many members report having their TSH suppressed from medication, without having hyper symptoms.
I think I would tell your doctor about your symptoms of being hyper, and ask to be tested for Free T3, Free T4 (not the same as Total T3 and T4), and Reverse T3, along with the TSH. While you are there, if not already done, I would also ask to be tested for Vitamin D, B12, iron, and ferritin.
Is the treatment you mention RAI?
If you are able to get those tests done, then please post results and members will be glad to help interpret and advise further.
I think I would tell your doctor about your symptoms of being hyper, and ask to be tested for Free T3, Free T4 (not the same as Total T3 and T4), and Reverse T3, along with the TSH. While you are there, if not already done, I would also ask to be tested for Vitamin D, B12, iron, and ferritin.
Is the treatment you mention RAI?
If you are able to get those tests done, then please post results and members will be glad to help interpret and advise further.
Liothyronine one 20mcg three times daily--i started the meds in April after surgery of TT then had to come off them for a few weeks prior to treatment have had treatment and put back on them for another 6 months i have to have treatment repeated and a full body scan then i should be starting i believe will be Levothyroxine???---the only other syptoms is that i have lost some weight of which i am pleased about
What is the specific medication you are taking? When did you start the 60 mcg? Do you have any other of the typical hyper symptoms shown in this list?
http://endocrine-system.emedtv.com/hyperthyroidism/hyperthyroidism-symptoms-and-signs.html
http://endocrine-system.emedtv.com/hyperthyroidism/hyperthyroidism-symptoms-and-signs.html
Hi i am taking 60mcg daily which is keeping my tsh levels at a suppressed state of 0.01 to 0.05 instructed by my Oncologist /Endo until i have further treatment and scans --im only presuming my tiredness is down to the fact that my levels are being kept so low has this is one of the side effects--not sure what my reference range will be but now doubt they should be higher than what they are being kept at now--this is all new to me after recently being diagnosed with cancer--had no problems with levels in the past prior to surgery---it was only the fact i had found a lump in my neck i found out i had a problem so im still learning
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