Someone asked me to write them what ive been through this last year. For the first time I actually typed out all the stuff ive been through. I still have not been "cured", but I do feel like I am tolerating my agony more and more every day. I feel like I may be inching closer to resolution, or possibly some sort of looking back and saying "man those were some bad times"
November 2009 started getting weird symptoms, ear ringing, anxiety attacks, back pain, dizzy, nausea, extreme thirst, ear ringing. Came and went.
Went through a battery of tests. Thought i had a bladder infection. Didnt understand what was happening. Kidney scan, liver scan cancer workup, MRI of back etc. Doctor told me my TSH was 5.10 and I was "hypothyroid".
Back pain kept going on, blood pressure was through the roof. Gastronologist thought it was possibly my gallbaldder, as it felt inflamed. Gallbaldder removed Jan 2010. Happy new year! No stones, thick lining of wall. Then they did a stomache scan, colonoscopy, thought maybe i had shingles. Finally someone did a tpo antibody test and it came back positive for hasimotos.
I started taking synthroid .50. It put me over the edge, sweaty, shaky, heart beat went nuts, diareah etc. Kept getting these weird attcks every day around noon. Thought it was from the thyroid. Everytime I took the thyroid, 20 minutes later my ears would get full and my ears would ring terribly. Felt very uneasy like i just drank a pot of coffee. They took me down to .25 of synthroid. Then they switched me to levothyroxine. Then they tried armour, then finally i was on tirosint for 6 weeks. I could not handle the thyroid at all. Every time i take the thyroid i am so exhausted i cannot function. Still kept getting these weird attacks. The Doctors decided to completely take me off thyroid until they figured out what was wrong with me. I saw a neurologist for the ear ringing. She said that there was nothing medically wrong with me. Tried to put me on cymbalta.
Currently on zero medication. I simply cannot tolerate the thyroid, but i know i need it.
I spent a week at the mayo clinic as well. They could not figure out what was wrong with me either.
The only tests that have come back abnormal:
low vitiman d
Low Bone mass
I have a adrenal fatigue test sitting on my kitchen table i have not taken yet. it came today.
I have a protein synthintesis with elctrophoresis (a cancer test) come back showing something going on possible cancer, but when i had the full cancer work up, it didnt show i had anything at all. They think it may be the hasimotos doing this.
MRI with without contrast brain x 2
MRI with without contrast spinal cord
MRI kidneys, liver
spinal tap/ Blood patch
2 sonograms thyroid no nodules
MRI pituary gland
heart work up
4 neurology work ups
full parkinsons work up/ ms work up - head of department ut southwestern medical
full lymes work up (twice)
sonogram of arteries in neck
vestibular work up
cancer work up including bone marrow tap
Full body cancer scan (peda scan)
MRI ears drums
Opthomology work up
ENT work up twice/ one by head of department ut southwestern medical
Pituary consultation head of pituary clinic, Harvard university
6 different endos in Dallas/ 1 in mayo flordia
Infectious disease consultation
Full allergy work up for food
Symptoms : ear ringing, tired, weight gain, hazy, sloppy feeling, shaky at times, palpatations, hard to sleep, poor memory, poor concentration, feeling of worthlessness at times, need 10 hours of sleep, never feeling refreshed, zero sex drive.