symptom question

[Brucergoldberg]

I had a question for you folks.  Do your symptoms come and go or are they worse at a certain time? Im hashis and I feel pretty good usually in the morning, early afternoon.  But around 3 pm I get these horrible waves that I can only describe to the gentleman as when you were a kid and you were hit in the "privates" by a ball.   Dizzy, sweaty, shaky, heart palps, irritable.   Then as the 5-6 oclock hour come on, the symptoms seem to get a little bit better.  By bedtime they are gone.

I am assuming this is from the hypothyroidism and the fact my tsh is 22 but i dont take any thyroid.   I wanted to know if anyone else had this same issue.  Im also wondering if this is something to do with my "boys" down there that are being affected by the hashimotos/ hypothyroidism.

{side note - are there any guys on here perhaps that may have the same issue?}

[Brucergoldberg]

If you had hashi's your blood would test positive for the antibodies of hashimotos thyroiditis.  Its a very accurate test.  Sounds like your Nodules are making your problems.

[Kim60]

Hi, sorry to get into your conversation although it's very interesting to me.  I am FINALLY having an antibody test today because I have both hypo and hyper symptoms and all my levels are in in the "normal" range.
I have been trying to get into an endo to have 4 nodules taken care (1 is pretty large) of and also help with my symptoms.
Is it possible to have hashimoto's when all my bloodwork is coming back normal? Sorry, I don't have the results with me or I'd post them.
Just wondering? I am the one who suggested this antibody test to my PCP after my levels came back normal and she agreed to call it in for me.  I thought I read someplace that this is pretty much the main test to diagnose this crazy problem.  
I have Chiari Malformation and know that an auto immune disease is very common with us.
Any help would be appreciated.
Thanks,
Kim in NH

[Brucergoldberg]

i feel like ive gone hyper in 1 day

[Totie]

It takes me 2-3 weeks to feel any difference in dosage change...I wish mine was only a one day reaction.

[Brucergoldberg]

I'm telling you it's never ever this back.  It's 10x worse on thyroid

[redheadaussie]

Bruce, you have to remember you have Hashimoto's as proved by your labs recently. Hypo is where you are at present. Going on the new medication for only a day isn't going to make you hypo....you are having a hypo day regardless....due to the Hashimoto's! It is coincidental!!!!

[Brucergoldberg]

OK I am a lot smarter now on this stuff than i was a year ago when i started posting like a bumbling moron.   I started thyroid yesterday.  I started .25.   I actually feel worse ON the thyroid. I know that my symptoms are HYPO symptoms.  I know that the thyroid has made me more hypo.  I also think i recall seeing some posts from folks on here that go hypo every time there is a level increase.  Is this true?

My tsh is 22.  do you think starting with .25 was a wise choice?  I am going to bump it up after 2 weeks if i can make it through the .25.   bruce

[Brucergoldberg]

I see what you meant by the melatonin......   Not for hypos.    It made the hypo symptoms worse,,,,,,,   Not for me.   Moose you were dead on.

[LazyMoose]

There are different forms of magnesium. Magnesium hydroxide "milk of magnesia" is a laxative.

I'm sure you've seen numerous posts on the other magnesium here. The most common 'mag oxide does' absolutely nothing.

Magnesium glycinate by KAL and the powdered Calm work the best at relaxing the brain and muscles when taken before bed..These are the most effective and tolerable forms.  It helps going to the restroom a healthy dependable 'clockwork' ordeal right in the morning - when this is supposed to happen. Most hypos cant 'go' so this is welcome. Magnesium citrate is the second best choice and is a little less tolerable in some people.

[Brucergoldberg]

Great....  Just took the melatonin and read this post.   Nice.  I can feel it.  I'm dizzyish like Valium feeling.  Holy cow!  Sleeping good tonight...   Doesn't magnesium make you go to restroom?

[LazyMoose]

Melatonin, Chamomile, Lemon and Valerian extract are the most used natural ingredients in not drug sleep aids. These are all available independently and in several forms like chamomile tea. Most brands of Valerian root are more potent than Melatonin. A word about melatonin, its use is not suggested in those with endocrine issues, as it is a hormone itself.

Dont forget 800mg of magnesium (but not mag oxide)  at night - a very noticeable calming effect on the brain. The powdered brand called CALM is great.

Many herbal adaptations used for leveling adrenal peaks/valleys also help with sleep, but vary greatly per individual.

[Nat_16]

It really depends.
I have both and when I'm hyper I have a TSH of someone who is just hyper...I've had TSH of 0.2 and when I am hypo I've had a TSH of 26! It really depends if you're hypo or hyper at the time.

I usually explain it like this...Having both is like the antibodies are fighting with each other to get what they want. The hashi's antibodies fight to desroy your thyroid and make you hypo while the Graves antibodies try to do their thing and send you hyper. Sometimes the hashi's will be winning and the patient will be hypo and if the Graves antibodies are more overpowering at the time it results in hyper.

[Brucergoldberg]

What's the tsh like of someone with both?

[redheadaussie]

It's true Bruce. There is research being done to prove that Hashi/Grave's at the same time needs a new name! It is not uncommon to have both antibodies in the blood.

[Nat_16]

Hi Bruce...I don't know why endo's tell you it's impossible to have both hashimoto's and graves, you can definately have both antibodies present.  There are a few of us here who have both hashi's and graves (myself included).

[Brucergoldberg]

Pd.  Thank you redhead

[Brucergoldberg]

I'd like to touch on something acidburn12 said.   She said her grandma had hashimotos and graves.  My 8 endos have told me this is impossible...   What's the truth?

[acidburn12]

WOW. I am, AGAIN so glad I signed up here. Because Bruce, I gave you sort of cliff notes versions with what is going on with my Hypothyroidism....very possibly because I didn't KNOW it could cause the INSOMNIA I have been having---or the feeling too tired (well actually I DID know about that one). I saw you mentioned Hashimotos (sp?) My Maternal grandmother had that along with Graves Disease and they just removed her Thyroid. But seeing as how you are so sensitive to the synthroid then...I am stumped. I was reading, there seem to be a lot of other people that are affected in the ways you were explaining. That has GOT to be frustrating. I can't imagine. It scares me because Hashimotos's/Graves might be where I end up as it runs in the family. Recently I have been feeling EXTRA tired and feel that something might be off with my levels. I have only been diagnosed for 4 years and still don't see a endocrinologist like they say you absolutely should. My doc cares enough to do the tests to make sure I am level every 3 months, but is that enough. And I don't know if THIS has ANYTHING to do with Hypothyroidism...but I am starting to lose my balance and just fall left (or right) into a wall. NOW I KNOW, I am clumsy...but this is different and I just feel OFF. Confusion. NERVOUS. Almost dropped a coffee cup without any warning. These things seem to point to neurological--but I don't want to start worrying about that just yet.  Anyway...had to share. I am sorry Synthroid does not agree with you. Maybe it's not agreeing with me and I just didn't put two and two together. It scares me because these days there are a lot of Doc's that just want to move you in and out of their office like cattle and not really take the time to listen to what the UNDERLYING problem might be. Too many times we get a band-aid put over the situation as a temp fix and what is REALLY causing it is not being researched.

[FTB4]

I take Lunesta, and I just stop taking it for a week every two weeks, I read that it is not advised to take melatonin when you are on thyroid meds, (After I was taking 3mg for two months!) but I have tried just about everything else for sleep, anti-depressants, muscle relaxers, antihistamines, Ambien and Lunesta seems to work for me, you are right about becoming dependent on it, after a while you get used to it and it does not work as well, that is why I go on and off of it. The melatonin  for the most part gave me little help, even when I took it with the antihistamines. I guess just like thyroid meds everyone is different.
Take Care Best Regards FTB4

[redheadaussie]

Bruce, I take Melotonin now, and it works really well. You need the normal dose of  0.3mg
Don't go for the homeopathic stuff that says 6X on it, that means it has been diluted down and has bugger all in it!

Don't take Lunesta, it is a benzodiapine. (think of Valium!) Not a good idea to take that as you may well find it difficult not to become in need of it all the time.

[Brucergoldberg]

Seems like a common problem.   I want to try lunesta.  My neuro said to try melotonin to help wind down.   Any idea how much?

[Totie]

If that is one thing I can NEVER get control of it is insomnia. I literally take 20mg of Ambien & that only lets me sleep about 4hrs straight. I can only take Ambien about once every 3 weeks, if I do it every night or every other night, it does nothing for me, the same with just about every other prescription sleep aide. I was sent to a sleep doctor & he basically looked at me and said, " you would be wasting your money on a sleep study because my staff would just watch you twittle your thumbs". We did try the CBT, but my mind runs non-stop, could never just focus on one thing. At the end the sleep doctor told me that most likely the untreated graves/hyper really messed up my body wiring. I guess my body is just used to the insomnia, I don't nap, however, I am physcially fatigued, but can't shut myself down to change it...

[Brucergoldberg]

Trust me...  im not hypoglycemic, but im sure i get episodes with hypothyroidism.

The new sleep aid they gave me is called SILENOR.  I dont like it.  I tried it twice.  It makes you sleep but seems like i was very anxious as well at the same time.

[SassySharon]

Are you sure you are not hypoglycemic??  Classic symptoms.!!! And that would be about the time that you would bottom out after lunchtime.  Sudden drop in bloodsugar and you crash.  Try taking your blood sugar when first start the shakes and again whenyou feel even worse.  If you drop your numbers then you will know.  Traditional testing did not catch mine.  A cardiologist had me test mine like this and boom that was it.  You have to do it when you are having the symptom.  My big strong husband has the same thing.  We keep gluclose tablets around for those times when it happens but try to eat proteins before carbs.  

Thanks FTB4 for that information on the Dr Program for Lunesta.                -sass-