Hi Barb - I am really nervous to try Tirosent (.112mcg) and Compounded T3 (.5mcg) after reading so many people's reaction to Tirosent. Muscle aches, weight gain, etc. Are these people only taking a T4? I had a total thyroidectomy in 2008 and was on levothyroxine only for a year and did horrible. In October 2010, I switched to Armour until -Sept. 2013 (2 grains) and did very well but not optimal. I switched to Naturthroid in Sept. 2013 (2 grains) and this did not agree with my body.
I read how Tirosent really did well for you so it gives me hope. Anywho - it causes so much fear to read these posts about how so many people reacted badly to Tirosent. I just wondered if they were T4 only - this would clear up so much....Please give me your thoughts....Thanks
My husband was on Levo and did develope a rash. Almost like he was allergic to it. It would come and go. against my wishes and he did not tell the doctor either, he took himself off of it due to the rash. Has not had it since, however, he has not had any thyroid labs run since he took himself off....
i am hoping to talk him into getting a physical done this month....He does not have any issues that i can see or that he complains about as far as hypo symptoms.
Men are so hard headed.....
Thank you so much for your response, Barb. I have experienced worsening of the rash w increased dosage which compounded and not synthroid. So I am not ruling out the connection between the rash and the active t4 ingredient in both the synthroid and compounded tablets. I am guessing it is probably the same ingredient in both of those pills. The compounded one has no fillers or dyes, that's the difference, as I understand it.
Here are my values - note that the range values remain constant at:
TSH =.4 - 5.8, t4 = .7 - 1.2
9/11: not on any meds
TSH = 28; t4 = .48
10/11: start 5 mc grms synthroid
1/12: TSH = .28; t4 = 1.18 - rx reduced to 25 mc grms synthroid
6/12: TSH = 5.43; t4 = .83
3/13: TSH = 6.45; t4 = .72
1/14: TSH = 12; t4 = .79 - rx increased to 37 mc grams compounded
I discontinued the meds a week ago. My md said it would take 5 weeks or so to get it out of my system and we'll see how the rash is and maybe do another blood sample depending…I feel no different on or off the meds. Have non of the symptoms of hypothyroidism except dry skin, but I'm almost 65.
I appreciate any comments from Barb and anyone else. Thank you, sally
Some people have reported rash when they are hypo. Do you have current blood test results that you could post, so we can see exactly where your levels are? Be sure to include reference ranges, which vary lab to lab and have to come from your own report.
Once we see your most current lab results, we might be able to make further suggestions.