Aa
Aa
A
A
A
Close
Avatar universal

thyroid hormone after full thyroid removal

how long can you survive without thyroid hormone after a full thyroid removal. and when would you start to see symptoms of not receiving the hormone, how long until you notice the effects of not taking the thyroid hormone after you stop taking the daily dosage
14 Responses
Sort by: Helpful Oldest Newest
Avatar universal
I know you did not ask questions or for help, but I couldn't ignore your post because I think we can help if you want to post your thyroid related test results and reference ranges shown on the lab report.  Also please tell us about specific symptoms you have.
Helpful - 0
Avatar universal
I am not sure where you are located, but I am pretty sure Levo is on the 4$ list at Walmart. You should be able to go to any ER and get an initial script if your endo or pcp won't help you, and their staff should be able to help fill out a mcaid app and refer you to your local free clinic. I feel like hell ON my meds, can't believe you don't feel anything off of them. I did cytomel only until I had radiation, but once I had to have a test and had to go off of the synthroid and life was pretty damn miserable. But everyone is different.
Helpful - 0
Avatar universal
New tech soon for organ print by 3D in Russian scientist. It is really bother to take the pill every day. I have no idea why most USA dr. suggest to remove. I regretted treated by RMI killed most my tissues. I wished I did not do that. In that time, I asked less dosage that Dr. gave. Still keep a tiny little tissues in thyroid hope. Cannot wait for the new med. tech in market.
Helpful - 0
Avatar universal
New tech soon for organ print by 3D in Russian scientist. It is really bother to take the pill every day. I have no idea why most USA dr. suggest to remove. I regretted treated by RMI killed most my tissues. I wished I did not do that. In that time, I asked less dosage that Dr. gave. Still keep a tiny little tissues in thyroid hope. Cannot wait for the new med. tech in market.
Helpful - 0
Avatar universal
For you, this is life sustaining medication. I would go to my local hospital emergency room. You have a potentially life threatening condition if not treated with Levothyroxin. I'm sure they would give you an initial supply and then help you establish yourself with medicaid
Helpful - 0
Avatar universal
I had a thyroidectomy and lost my ins when I came to tx.i have had 4 blood transfusions.its now been 4-5 months and my stomach is swollen, I stay very sick and I cannot stay awake anymore.havent got a dime e.im miserable and being a single I cannot afford a doctor. I know im not well.im so exhausted and sickly feeling..im in garland tx now and need to see a doc so bad.im grouchy,sick,sleepy and dizzy
Helpful - 0
Avatar universal
i know for a fact it was a total thyroidectomy, one because i had no choice in it and two i have the report right next to me. thats why im wondering if i got screwed on the behalf of the surgeon by not doing what was said in the report. My mother was with me durring the whole proccess and she was the one that thought something was wrong and made me see the dr. about my thyroid in the first place. you may think im lying but im not and i havnt talked to my mom because i know she would have a freak out and thats the last thing i want to have happen right now. in the report the only thing that they left were my parathyroids  which is very good cuz id hate to have to watch my calcium lvls while being lactose intolerant
Helpful - 0
219241 tn?1413537765
I seriously doubt you have had a total thyroidectomy. You probably have some remaining tissue. Some Total thyroidectomies actually leave the isthmus (the middle bit).
Or it may have been a Near total thyroidectomy. You would not have lasted past 3 months without being in a coma and now dead, if you had a true total thyroidectomy.

    If you are feeling fine and have no insurance then I wonder what the problem is? Are you thinking you might drop dead from no Synthroid? Hate to tell you, that would have already happened!
  If you feel fine, then don't worry! Unless you start having symptoms, which you will have no choice but to see a doctor, then you are fine.
  You can ask for your surgeon to give you a report on what was done, I think you will find it was a near total with some partial remaining thyroid which is now functioning all by itself. It happens.
Helpful - 0
Avatar universal
i had blood work done probly back in june of 2010..i was scheduled to get another work up but without insurance its to expensive, and believe me im freaking out about not having my synthroid but it bothers me more that ive gone so long without it and i feel normal. im trying to get more hours and better pay so i can get a bloodtest and possibly some other to tests to find out whats going on
Helpful - 0
1445110 tn?1388209711
When is the last time you had any blood work done? I would be scared to death to risk it. I didnt think you could live without it. I know that Last December i ended up in the ER with psychosis and was so sick I thought I was dying. I wasnt absorbing my levothyroxine for some reason. I also had a TT in 2006. Best of luck. Sorry you lost your insurance.
Helpful - 0
Avatar universal
im asking this because ive had a full thyroid removal lost my health insurance because i dont make enough money and its been almost 6 months and i feel fine im not over tired at all . i know i had a full removal i have the surgery report with me and my mom is a nurse and she explained it to me that we couldnt survive more than 1-2 months so im to the point were im going to need to find out if i was lied to on my surgery. i had my thyroid removed back in 2007
Helpful - 0
Avatar universal
I think that is very dangerous to stop taking your daily dosage of thyroid hormons because they are very important for function of most vital organs in human body
Helpful - 0
Avatar universal
PS, how long you can survive depends on how low you were before thyroid removal.  I had already had 1/2 of my thyroid removed, so I was low to start, yet I survived 7 full weeks...if you start out with normal thyroid function when they remove it, you will be better off.
Helpful - 0
Avatar universal
I went 7 full weeks, felt aweful. I felt OK for about 2 1/2 weeks, then at about 1 month it got bad. Those last two weeks were hell.  My TSH was up to 186 the week before I had RAI, then the day after RAI I could take my levothyroxin, in about 20 minutes I felt a total body rush twice, my whole body shook, then I started feeling better.  It took another 4 months to get the medication right, now 1 1/2 years later, I feel normal.
Helpful - 0
Have an Answer?

You are reading content posted in the Thyroid Disorders Community

Top Thyroid Answerers
649848 tn?1534633700
FL
Avatar universal
MI
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
We tapped the CDC for information on what you need to know about radiation exposure
Endocrinologist Mark Lupo, MD, answers 10 questions about thyroid disorders and how to treat them
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.