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untreated graves disease

I have been on carbizamole for 13 months im sick of taking them and i have stopped will this get worse or just stay the same?
5 Responses
Avatar universal
Have they increased your dose in the 13 months? Have they tried other ATD's?
Avatar universal

I am so happy to know that I am not alone!  I have been sitting here reading your stories and I feel your pain.  I was diagnosed with Graves in October. Put on 10 mg x 3 of Methimazole, and 20 mg Propanol x 4.   Since being on medication I have put on about 15 pounds, have a bloated belly, had jaw and tooth pain for the first couple of weeks on the meds, severe leg cramps, muscle pain in my shoulders, abnormally heavy periods (more frequent), and have been on edge and agitated to the point of driving away my family and boyfriend.

On New Year's Day I stopped taking my meds and on Jan 6th woke up feeling like a million bucks!  I would rather deal with the disease than the side effects of medication.  I am researching supplements and alternative therapies and I am quite sure my doctor will be pissed when I go back to him at the end of this month.  Does anyone have any good testimonials about alternative treatments for this disease?

Avatar universal
How is going without the medicine?  I am in the same boat.  I stopped taking my medicine  in Dec and feel GREAT.  But when I went back to the doctor she was pissed and put me back on the meds.  I then had an allergic reation to the Methimazole.  She now wants me to have radioactive iodine treatment, and Im just not sure that is the right answer.  Did you find anything about alternative theraapies?
Thanks
681545 tn?1318017380
  you have to stay on med's graves can't be left untreated,i'm off my med's was on them for 20 months have gone into remmision,hope i can stay this way.i no it's hard on med's but when you cut down to 5mg a day it gets better.don't give up without a fight as one girl said YOU HAVE GRAVES IT HAS'NT GOT YOU...--)
393685 tn?1425812522
I don't agree that everyone needs meds to lower an autoimmune attack. and yes, there are alot of alternative things available. I wish I would have at least learned more when I was in the same boat with a Graves Dx then just doing the norm and eventually having RAI prescribed.

After 8 years now and spending 5 of them miserable after I did RAI - I have learned so much.

One thing to keep in mind that ANY autoimmune attack is directly related to a weak immune system and if that is not fixed pinpointing ANY treatment - medically or alternatively soley based on thyroid treatment will be difficult. Its not just thyroid levels - its the body and knowing what you lack in the immune system can sometimes balance the endocrine levels back out.
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