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Avatar universal

Is there a way to diagnose Tourettes without observational evidence?

Okay so here's my problem. I'm 16. I've had Tourettes since as long as I can remember. I know I have it, because I had to "tic" my whole life. Like flex a muscle until I feel the sufficient amount of pain, cough until I feel the sufficient amount of pain in my throat, and so on. I'll have to blink and squeeze down as hard as I can and even flick the nerve that you hit on your "funny bone" which *****, but it's a urge that I can't resist even if I hate it. I tic like every 5 seconds when I'm at home in my room. When I was little I'd have to bang my head until I felt pain in my skull, and bang my knees together extremely fast. And I thought I was insane for the longest time, but then I looked online, and finally realized Tourettes fit the bill perfectly.

But my problem with getting help is, I have extremely bad social anxiety. To the point where I can barely get friends at all. And in turn, I don't tic that much in public, which is good. I can usually go all day in school without doing a noticeable tic, only small ones no one will see. But then I get an explosion of tics when I get home, like all the ones suppressed during the day. It's frustrating and annoying. And lately I've had a vocal tic that involves breathing in and kind off making a weird noise and it's so frequent and violent that I get really dizzy if I can't keep it under control.

And my mom took me to the doctor last week, because she knows I have it because I tic bad at home. And the doctor was quick to assume I didn't have it, because I wasn't doing anything right then. But I was too nervous to tic because of my social anxiety. I'm great at keeping it in control around other people. So yeah, he said I'm good, which I'm far from.
So I'm wondering if there's any way to be diagnosed without the doctor being able to observe my tics, like I got a brain scan when I was little, and never got the results. I'm not gonna be able to just relax or even tell the doctor that I don't do it around other people, but I know I have it. It was like when I watched videos of people with Tourettes, it was so clear, I have some of the same tics and everything. I really want help, but I'm not gonna tic in from of other people. Any help would be appreciated.
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Avatar universal
Forget about the doctor. My doctor said that I PROBABLY have tourettes but didnt know for sure. It sounds like you do and im a little  jealous that you can control your tics in public. thats not easy for most people with TS. Also, dont be socially awkward. people like us have enough to worry about. put yourself out there. TRUST ME.
Helpful - 0
Avatar universal
I have the same issue and do not understand it, I know its a year later but I stumbled upon this and it moved me. I know exactly how you feel, having to fight it to sit in class, or go out. Everything is fine and than the control gets easier but as soon as your alone its there and it explodes, the social anxiety makes things worse and that alone is an issue that is horrible, and no matter how hard you try to fight it and put yourself out there because thats what they say "just go experience it" and you will be all better.. that is not true it makes it worse depending on the situation and than you just feel like your distracting yourself to only take away your anxiet and in turn it makes it worse. I have my tics.. and they often come in when im watching a movie, or in the darkness as well. I have not yet found anyone who knows this either, I know im not crazy and neither are you.
Helpful - 0
Avatar universal
I have the same issue and do not understand it, I know its a year later but I stumbled upon this and it moved me. I know exactly how you feel, having to fight it to sit in class, or go out. Everything is fine and than the control gets easier but as soon as your alone its there and it explodes, the social anxiety makes things worse and that alone is an issue that is horrible, and no matter how hard you try to fight it and put yourself out there because thats what they say "just go experience it" and you will be all better.. that is not true it makes it worse depending on the situation and than you just feel like your distracting yourself to only take away your anxiet and in turn it makes it worse. I have my tics.. and they often come in when im watching a movie, or in the darkness as well. I have not yet found anyone who knows this either, I know im not crazy and neither are you.
Helpful - 0
1666434 tn?1325262350
Have you tried videotaping your tics at home and then showing your doctor the tics?
Helpful - 0
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