Tourette's Cure - Worked for Me

[FNPinMaple]

Dear friends,

I have Tourette's syndrome, or at least 'had' it until about a year ago. While my symptoms were quite severe, I now, with proper care, am completely symptom free.
I have been using an oral appliance that has eradicated my symptoms, the appliance being based off the work of Dr. Anthony Sims    http://www.absimsdds.com/
My orthodontic specialist spoke to Dr. Sims, and made a similar appliance for me, and my tics stopped.

I can't believe this, and didn't believe the videos on Dr. Sims website when I saw them, but PLEASE check it out before you judge this.

To give you an idea of the extent of my Tourette Syndrome experience, I viewed a video of myself recent, where I would tic on average 6-8 times in 2 minutes.
Which, in a 16 hour day would be 2,880 tics, a not-so-insignificant number.
Furthermore, my tic (main one) was a serious jaw-wrench, which led to severe headaches, intense lacerations inside my mouth (had to have teeth taken out to stop the deep lacerations), and a loud cracking in my TMJ.

Since settling in with this appliance, I might have 1 in a whole day, and often never, and all the internal "neurological storms'' that can come with tourette syndrome are now gone.

Here is a paper on the treatment:
http://www.tmjstack.com/casereport.pdf

reply with any questions.
This has been a dream come true for me.

with love, and empathy,
Rob

[brenda312]

I am just hearing of this.  Could you tell me where your dentist is in Texas?  We are in Dallas area.  Thanks.

[tourettemom486]

My son has had his appliance for about 3 weeks now. Our dentist in Texas is working with us copying Dr. Stack's work. I have a couple questions
1) How long did it take to see a significant difference in your tics?
2) We are having issues getting him to eat with it in. Any tips?
3) now he has an ulcer from the appliance, he can't leave it in right now till it heals - will this mess things up? So far the changes we are seeing are in his disposition, much more tolerant of everyday life. Been more active and engaged in life and friends :).

[FNPinMaple]

Hello there,
I realize that the thought of having an appliance in your mouth may not be a comfortable thought. However, I do not go around with my jaw jutting out all the time. In fact, over two years in now, I often will only wear it when I sleep, and maybe for an hour during the day.

Given the side effects you are recounting, I would greatly recommend at least trying it out.

I had taken haliperodol, resperadone, and tetrabenezine for years (obviously not at the same time) and have experienced the numbing side effects of these drugs.

Currently, I take none - at all - and will, it seems, never have to go back on them.
Further, once the appliance has been worn for some time, as you will find in posts above, they can often adjust the jaw through braces, removing the need for a mouth appliance.
I haven't had it done, but it is performed.

I hope this clarifies the issue.
warm regards,
Rob

[GJ1978]

Hi, I haven't tried to appliance. I'm a 35 year old male that's had tourettes/ocd since around 8 or 9. My suggestion would be to try a glutamate antagonist...like memantine or riluzole. They seem to have less side effects than the typical med's used to treat ocd/tics. I've been on paxil since I was 15 and risperdal since I was about 20. They both just basically kept the edge off. The sexual side effect ***** though. No sex life at all. And I'm still not half as productive as I could be if it wasn't for the ocd and tics. From what I've read glutamate antagonists get more to the root of the problem..as ocd and tourettes patients have high levels in certain parts of the brain. Unfortunately I don't have insurance...so I can't afford any glutamate antagonists. I would try Dr. Sims solution, but it doesn't seem very practical to go around for the rest of my life with an appliance holding my jaw open and out....which I have to open my jaw and jutt it out quite a ways to get relief. Anyways, I hope your daughter finds something that helps her soon. I know how tough this condition can be.

[Lorenrose]

Does anyone have a teen with Tourette's struggling academically. Please any suggestions on how or where to get them help catching up.

Thank you
Lorenrose

[Lorenrose]

Hello rob
I got my daughter the appliance, she has been wearing it for two weeks now although she won't wear it to school but as soon as she gets home wears it till the next day. It has not helped her. My question to you is how quick did this relieve you from having to tic. We went to get it adjusted already and to no help at all. Any suggestions

Sincerely
Lorenrose