My husband had a liver transplant in 2012, the result of end stage liver disease caused by Hepatitis C. It is not an easy procedure but it saved his life. He has had complications post transplant.
I would recommend you be evaluated for transplant and listed. Do you live in the US? if so and if you do not have a living donor, your MELD score will determine when you will get your transplant, You can always change your mind if you decide not to go through with it. My guess is that if you are offered a liver, you will accept it, because you will be a very sick person at that point.
Good luck on your decision and I hope you continue to feel well.
The question is not difficult to answer whether or not you need a liver. A good Hepatologist will know. A biopsy should tell all. If you've never had one, it's no big deal. Before my transplant I had 3. I had my transplant 9 months ago and it was the best decision of my life, otherwise by now I would net be on this earth.
There are risks, but then again, there are risks every time you get in your car and drive. The risks of getting a transplant are very few and well worth the gamble. If I had to do it again, I would in a New York minute. You will literally have a new life. A second chance. A big smile on your face. Find a good Hepatologist and best of luck...
Returning after quite some time.
I am yet not listed by Grace of God. My Hepatologist has said that I need to be mentally prepared for a transplant and since my case is not alarming he is optimistic that i can do it without a transplant for some time.
I have been diagnosed with Portal Vein Thrombosis 4 months back and have been on warfarine dosage. He suggests that my portal vein can get recanulated soon and I will be off the warfarine.
Life Goes on ..with Gods Grace and good wishes.
Do you have to be on meds the rest of your life so that you don't reject the transplanted liver?
This Dec. 2nd will be my three year post transplant and I am very strong and healthy. As for the Prograf (anti rejection drug), I started with 10mg a day after the transplant. After a few months, I went down to 4mg daily. I am now down to 3mg daily and in July will test to see if I can lower again. My doctor has one patient on 1/2mg daily and one patient on no anti-rejection pills. As time moves on and the body becomes more adapt to the new liver, the anti-rejection medicine will be lowered.