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458375 tn?1216324412

When does the novelty wear off?

I just got the call Tuesday the my meld score had gone to a 16.  At UW Madison, you go on the "short list" (active list) with a score of 15 or higher.  Today I had to meet the surgeon, LCSW, nutritionist, get a chest x-ray, EKG, go to pre anesti clinic, ect....  I received a notebook with information and a DVD to watch about each stage of the getting prepared process.  I can no longer turn my cell phone off.  Now I won't be able to sleep tonight because I will be staring at my cell phone.  When does that feeling go away?
4 Responses
Avatar universal
That feeling will go away when you start to 'get back to your normal life". What kind of transplant are you waiting for?
458375 tn?1216324412
Oh! I thought I mentioned it...MELD score refers to liver....
338734 tn?1377163768
I know the feeling well. It is best not to dwell on it. Try to get on with doing the things you need to do and not think about it. I know that is much easier said than done, but you can drive yourself nuts thinking about it. I hope you will get "the call" soon.

Don't be surprised if you get the call and then are sent home. This happens and was a big shock to me the first time it happened.

Best of luck and success to you.
338734 tn?1377163768
I would like to help any way I can as a one who has received a transplant (2-1/2 years ago).
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