I have had Botox in the past for 5 years in a row. Yes and no it worked. But then in my medical records I was lumped into a migraine/headache patient. It hurts like cr@p. But migraine and headaches are not true TN symptoms.
I have atypical facial tn and occipital neuralgia. Suffered from migraines since 9th grade. I started botox therapy in march of 2012. It is painful 22 shots in trigger points. Takes a few months to help. Three month intervals. But it does help. Not a fix but a free zone sometimes short but better. Can lower pain meds. I went off all anti seizure meds three years ago, tried them all, lyrica too,nothing helped. Nerve blocks, rhizotomies, acupuncture, etc. the botox does help. Some. Expensive though. Takes a lot to get approved, took almost a year. I'm on medicare so more hoops to jump. But. I have been able o lower pain meds. It did trigger me this month though,but its winter, my worst time of the year so we will see.
Dr Casey is based in Michigan.
Sorry about the asterisks. Guess I'm not allowed to give out another website's address.
Google the Facial Pain Association
Thanks for your feedback. I read about pilot studies using BOTOX for the treatment of TN but they were in Teheran, Florida & Turkey. Their results sounded good over 90% pain relief after 2wks with rest suffering from droopy eyelids & some other facial complications which resolved themselves after a few weeks. But could not find anything in the UK. The website address you gave me was asterixed out for some reason...
Where is Dr. Casey based?
Thanks for your help!!!:)
There have been studies about TN and Botox. But like a lot of studies regarding TN they are small groups of patients and no long term follow-up. Definitely check with your doctor and do research.
As for doctors who perform Botox injections for TN, you may want to try the Facial Pain Association. You can call them and ask if they have any doctors on their list. Their website is:
I have heard that Accupuncture can help. I've seen a viseo where Dr. Casey, a neurosurgeon well-known in the TN community says it can help some patients. Again to find a doctor, try the FPA website for their contact number.
My mom has been diagnosed with atypical Trigeminal neuralgia after 3.5 years! of suffering & given medications for conditions that she did not have! To watch her suffer is unbearable. She is 75 & does not tolerate the medication & too old for surgery as she is not in good general health.
Does anyone of any neurologists who inject BOTOX? I heard it provides some kind of temporary respite from the pain... Or, Acupunture practioners who specialise in facial pain?