Please HELP, Trigeminal Neuralgia

[werwhower1998]

I have Trigeminal Neuralgia. I have had MVD surgery on both sides yet it returned on one side. I have been told by several dr's that there is no pain management for it and that surgery to sever the nerve is all that can be done. I am currently highly medicated and struggling to work. Please let me know if any meds anyone has found succesful. I have tried, amitriptylene, neurontin, toradol, dilaudid, dilantin, oxcarbazapine, and more!

[painterchic]

I have tried so many different things all with no success including what you have tried, but they either didn't work well  or had major side effects. I am currently trying a new drug called VIMPAT. It's an anti-seizure drug designed to deal with the pre-seizure stage. Who knows. All I can say so far is that it is helping a bit, because when I have forgotten to take it I have felt worse, and there are NO side effects. None. zero. Which is wonderful.
I am still in the 'trial' phase but am hopeful this is it. But as we all know things stop working sometimes so I am not going to get too excited. It doesn't take it away completely but it does help a bit.

[APATCHE]

I AM APATCHE AND I HAVE HAD THE SAME PAIN ON THE RIGHT SIDE OF THE FACE FOR ABOUT 15 YEARS AND I TAKE GABAPENTIN 400MG 3 TIMES A DAY WITH EPITOL GENERIC FOR TEGRETOL 200MG A DAY AND I TRY TO STAY OUT OF ANY COLD WEATHER GOOD LUCK

[cwanal1]

I took neutontin for several years until it started to take more and more to acheive the same level of pain relief at which time my Doctor switched me to LYRICA 75mg 3 times a day. Except for the occassional flare up the LYRICA seems to work.
Good Luck
cwanal1 sends