Hi, my name is Keith and I was diagnosed with TN a few years ago, but I think I've had it most of my life. I don't have the typical facial pain, but have it in the back of my head, and the top of my head feels like it's sunburned all the time. I don't know what triggers the pain, but the sun and the heat intensifies it. Even a little bit of wind, or just touching my hair causes pain. My left eye is also tired a lot of the time. Does anyone else have these symptoms? I was on Tegretol and am currently on Carbatrol, but they don't work well. I also tried physical therapy and chiropractic care, but they haven't worked either.
Has anyone had injections to relieve the pain? Has anyone had the surgery or the glycerol injections? I'm seeing a pain specialist next week. Any suggestions?