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Avatar universal

2 years, no answers

The title pretty much sums it up, I'm a 21 year old girl and have been sick for two years with very few answers. It's to the point where I've been unable to work or go to school for about a year and spend most of my time either stuck at home or in bed. I've seen many specialists and no one can figure anything out, and I'm getting pretty fed up!

Some background: I have type 1 diabetes and hypothyroidism, that are both controlled with medication.

My most bothersome symptoms are almost constant low grade fevers, terrible night sweats, weakness, extreme fatigue, headaches and a strange feeling of pressure in my neck under my jaw. There are more but those are the ones that effect me the most.

I've had many tests and the only things that are always abnormal are my red blood cell count (high) and my lymphocytes (low). Everything else is normal. Which is why no one knows what to do with me. I know that something must have been missed by doctors in the last couple of years for me to be this sick. I'm not quite sure what to do.

Does anyone have any ideas/suggestions?
5 Responses
10389859 tn?1409921868
Do you see an Endocrinologist?  Has he/she checked you for these symptoms and do you have any nodule (lump) to your thyroid (neck) area?

What other medical problems do you have?
What medications and supplements do you take?

Is your Endo aware that you are running a fever and your labs are abnormal as you stated?  What does she say about it?

How are you sugars running considering all of this?

I would go back to your Endo. and have him/her address these issues since it appears more endo related.  If she doesn't address them, it's been a while with no answers, time to look for a new one.
1756321 tn?1547095325
I too have hypothyroidism - Hashimoto's thyroiditis. I also have autoimmune pernicious anaemia, vitiligo and alopecia areta.  Those naughty genes~! :)

The following info is from the book "The Everything Guide To Thyroid Disease" by Theodore C. Friedman, MD, PhD and Winnie Yu Scherer:

"Although the majority of people with Hashimoto's will not develop any other disorders, it's important to know what some of these autoimmune conditions are in case you do start to experience symptoms. Keep in mind, too, that you may be more likely to develop Hashimoto's if you have one of these other conditions.

Type 1 diabetes
Pernicious Anaemia
Addison's Disease
Vitiligo
Celiac Disease
Alopecia Areta
Systematic Lupus Erthematosus (SLE)
Rheumatoid Arthritis
Sjogren's Syndrome
Inflammatory Bowel Disease
Multiple Sclerosis (MS)"
Avatar universal
Yes I love my endocrinologist, she feels terrible that she doesn't know what she can do to help me. I have a nodule on my thyroid but on my last ultrasound it showed to have gotten smaller so it's small now. Apart from Type 1 diabetes and hashimoto's I have IBS and GERD. I take prozac, synthroid, seasonale and vitamin D.

Yeah my endo is aware of the fever and the labs. For the high RBC she sent me to a hematologist, and the hematologist did a bit of additional testing and didn't find anything so that was that. :(

Thanks for your help!
Avatar universal
I have Hashimoto's also!  Bad genes is right! I've had most of those conditions ruled out as of now. Very stuck! Thanks for your help!
1756321 tn?1547095325
No problem. :)  My mother had severe GERD and severe LPR and she no longer does as she takes betaine HCI with pepsin supplements (to increase stomach acid) and digestive enzyme supplements (to also help with digestion).

Just adding this article from Diet Doctor (LCHF stands for low carb high fat). Sweden's new dietary guidelines is LCHF to combat the obesity and type 2 diabetes epidemic.

Diet Doctor One Year on an LCHF Diet with Type 1 Diabetes...

"How does an LCHF diet work with type 1 diabetes? Here’s a one-year update:

Today I celebrate 1 year with LCHF, or I could say that I celebrate 1 year in good health! I can certainly endorse the LCHF diet as being good for type 1 diabetics.

Besides a more stable blood sugar and a more easily managed diabetes, I’ve gotten rid of pain in my legs, headaches, GI problems, and constant throat infections. Previously, I had recurring yeast infections, but during this past year I haven’t had a single one!

I only need one injection daily, instead of the previous 5-9. I eat delicious food, and I don’t miss anything. I have more energy and I’m happier than ever before! During the past year I’ve also gotten to know, and come in contact with, a lot of great people through Instagram and my blog!

I could go on about more positive things, but now I’m off to make dinner. A fatty, smoked rainbow trout to honor the day!"
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