Any ideas about chronic episodes of vomiting, nausea and abdominal pain?

[Jenarea]

It all began about 6 or so years ago. I began having episodes of vomiting and abdominal pain. It took doctors a year to figure out my gallbladder needed out, so they took it out. I still have episodes of vomiting and left upper belly abdominal pain. The episodes have become more frequent within the last year or so and currently I experience pain every day and nausea. I've been in and out of the hospital a lot since December and have had 2 endoscopies, a colonoscopy, two CT scans, a cat scan and urine and blood testing. I have recently within the last month or so have blood in my urine that I was given antibiotics for, but has returned and gone away several times. Doctors cannot figure out what is wrong and I have been unable to work for over a month now. I had trouble working before but was trying to muddle through. Now it's hard for me to even leave the house. I get dizzy, lightheaded and tired really fast and have to take nausea pills every day in order to eat. I have lost 30 pounds since December. I was recently tested for Porphyria and going to do a retest on it to make sure.
I'm tired of dealing with this every day and it has made my anxiety and depression worse. I'm to the point of seeing if I can get some kind of disability because I can't keep a job anymore.
does anyone have any ideas about what could be causing this?
Thank you

[jennyshida]

Not a doctor but my sister had similar symptoms, turned out to be allergic to many foods, have you done food journals yet? It was carrots, anything with carrot in it, barley, etc causing her vomiting episodes. It was regular to when she tried to eat "healthy" each month, because she would consume greens etc, and is allergic to most forms of lettuce. Also reminds me of Chrons/Celiac, hopefully it is something somwhat easily treatable like that, good luck. She went 15 years like that, vomiting regularly until she found out. Good luck!

[JohnnyRocket244]

I sent you a private message with info about my friends support group. Hope it might help!

[JohnnyRocket244]

There are some known conditions (unfortunately by very few doctors) that can cause the problems you're having. A friend of mine has many if not all of the same problems and after 20 years she was recently diagnosed with Nutcracker Syndrome (Left Renal Vein Compression) and SMA Syndrome (Superior Mesenteric Artery Compression) as well as a condition that I have called May-Thurner Syndrome (Left Iliac Vein Compression). Nutcracker Syndrome is a complex, debilitating condition that is known to cause Chronic Fatigue Syndrome as well as many other problems including Hematuria,  Dizziness, Fainting, Nausea and Vomiting due to compression of the Splanchnic Vein. It's located in the upper left quadrant of the abdomen which could explain the pain that you're having there.

May-Thurner Syndrome can cause many of the same problems. It's been causing me Chronic Fatigue, Anxiety and Depression for the past 25 years. It wasn't until recently that I got diagnosed and treated for this condition and it's a miracle how much better I feel now.  Both of these vein compression syndromes should be checked for as they frequently occur together. A good doctor to go see may be a Vascular Surgeon that is very familiar with these Vascular Vein Compression Syndromes of the Abdomen.

My friend has a support group If you're interested send me a private message and I'll give you her info. She is very knowledgeable about these conditions. The good news is if you have any of these, a simple stenting procedure could give you great relief from you're symptoms, although surgery is sometimes required.  

[Jenarea]

Thank you so much for your response. I will have to check into those conditions further.  I could definitely use some support help as well.

[Jenarea]

So I spoke with the doctor I have been seeing and doing tests with and mentioned a possible vascular issue. Of course he is not ready to start testing me for it just yet because he wants to rule out all gastro and digestive issues first and make sure my kidneys are ok. So I'm getting an ultrasound of my kidneys next week.
I found it very interesting while reading and looking into nutcracker syndrome how I have all the symptoms of it and I was surprised at one symptom listed that I have always had and never would have thought was a symptom of a bigger issue.
my psychiatrist wants me to start seeing a counselor to help me deal with these symptoms happening so often because I'm having a lot of trouble with depression because of it all. Lately I just wish my body would give out and let me go. It's not a life,  it's constant fear is what it is.