Autoimmune symptoms with no inflammation markers in blood

[modkam]

I am hoping to get some insight into years of different problems that doctors continue to write off as depression or fibromyalgia (I am a psychologist: it's not depression, and a neuro recently evaluated for fibro and that is not it). I am a 31 year old female. Don't know half my family history d/t adoption, mother died at 45 from complications of severe SLE and RA. My symptoms have come and go over the last decade or so, and here is what has been found/experienced:

Objective:
Low platelet counts (current)
Low white blood cells (current)
Anemia (in the past)
White and red blood cells in urine (past)
two hospitalizations for kidney infections, one with the addition of a kidney abscess and dangerously low platelets
one hospitalization for a severe throat abscess
Deficient in vitamin D (current)
Cyst on pineal gland
One white lesion on brain MRI
Episcleritis (inflammation of eyeball)
Negative for ANA, Lyme, RA titer, TSH, ESR, Anti CCP

Symptoms:
Pain in joints and muscles, most severely in my low back and neck, hands and feet
Numbness in big toes, tingling on and off in hands
Migraines
Low grade fevers on and off
Severely itchy rash on elbows and knees that comes and goes, looks like small bumps under the skin
Constipation
Rectal bleeding
Sores inside nose on and off
Hair loss around hairline
Stiffness in morning and after sitting for long periods

Hematologist and neurologist suggested autoimmune as strong possibilities d/t blood counts and inflammation of eye; Primary care physician blew this off and continues to assert depression/fibro because of my negative inflammation markers. I am reaching my wits end. Some days I feel like I can barely move, and it hurts me to not be able to play with my young child like I want to. Awaiting appointments with gastroenterology and rheumatology, but am very scared that they will react to me the same way my primary doc has. Anyone have any ideas? Thank you!

[TheLightSeeker]

I replied at the Autoimmune Community.

[Gio77Italy]

Let's start from the top: The fact that your symptoms are real does not mean that you are not showing signs of anxiety or depression. Which is probably the reason why your physician thinks your physical ailment is caused by psychosis.

Paradoxically though, he is one of the causes of your anxiety.
So, first of all, you should consult other primary care physicians and find one who shows interest in your syndrome.

I think that you need to accept first the fact that you are sick, there is probably someone around you, including your doc, who isn't helping with it. Accept that your body is sick, then look for a doc. Who won't tell you that your symptoms are caused by depression.