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Can't get real help

Since a very young age I have had the same symptoms only now they are getting worse. My symptoms are: reoccuring sinus infections that follow into an ear infection, then about once a year it blossoms into severe jaw pain making my face swell. When I went to the ER with this I was told I had the Mumps, then I was told I had Lupus, It then spread to my groan area, I was given a heavier antibiotic and it finally cleared up after two months. my primary refuses all of these as diagnoses and states that I have chronic fatigue. I have had abdnormal SED Rate of 36. Currently it is at 12, but to add to the fun of all this 2 years ago my symptoms turned into the flu low grade fever every day, chronic diarrhea, swollen abdomen, dizzy spells, my hands shake periodically. My joints/bones hurt all of the time. headaches, frequent urges to urinate. I had two non-cancerous tumors removed from my abdomen.I believe they came back but the surgeon won't touch it again. After I eat, my stomach hurts like I've eaten way too much, even though I've consumed next to nothing. Drinking more water makes diarrhea worse, fiber makes pain/everything worse. probiotics didn't help. If I bend over repeatedly and push myself to do these things, I have bled full bowls of blood. Ran to the ER, they checked bloodwork and referred me to primary because I wasn't continuing to bleed and wasn't dehydrated. I've had my gallbladder removed, I've had MRI's, lots of blood tests, they show little abnormalties..nothing that entitles me to treatment. My weight goes up and down, thyroid test showed nothing wrong, not diabetic, checked for heart problems, they did a colonoscopy, endoscopy (they found excess stomach acid diagnosed with GERD), checked for lyme disease, lead poisoning, arsenic poisoning, Celiac disease, chrons, Addisons, specialist says it isn't Lupus, my white and red cells were getting higher and higher each month they checked, but not high enough to be abnormal- they put me on a treatment for fibro which lowered both to the point I got really sick (4), they took me off and it went up again right away. since they removed the two very painful tumors they haven't checked any blood work and I'm sick of all of it. I'm frustrated that they don't understand how serious it feels to me because I can't do any of the fun things I used to, I can't work out in the gym to help my weight problem, I can't finish my college degree because I can't sit in a classroom. It just *****. My doctor has reverted to putting me on an antibiotic, which would be repeating treatments. I have already had several doses of antibiotics. If anyone has any suggestions I'm open for them.
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lisen to he doc
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Avatar universal
Have you looked into Candida?  Many of your symptoms are commonly seen in patients with Candida.  They are also seen with endocrine system disorders.  Often people are diagnosed with fibromyalgia, chronic fatigue, lupus, etc., only to find after not seeing any results or minimal results with treatment that they were misdiagnosed.  There are many other conditions that share many of these symptoms too, which is why diagnosis is difficult.  Endocrine system and metabolic disorders also could be at the root of your symptoms.  I had symptoms I never connected for years, was misdiagnosed, made worse by the wrong treatments.  After switching doctors, I learned that I have an endocrine system disorder.  After starting treatment, I noticed that the other symptoms I had were gone.  The next thing that I am going to look into for myself is Candida, as I tend to have many of the symptoms, and it can effect the endocrine system.  I have also suffered ear infections and digestive problems for most of my life.  A couple of years ago, I had a scary experience with severe bleeding from my digestive tract (large intestine) to the point of passing out.  It lasted for a week.  I had a colonoscopy, and was given a clean bill of health.  They thought that perhaps I had a TIA (stroke) in my large intestine, because they could find no reason for my bleeding.  My two best suggestions would be to investigate endocrine system abnormalities (because they can cause many of your symptoms) and candida.  
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