I'v been sick for around a year now.
I did post here back in June (http://www.medhelp.org/posts/General-Health/Undiagnosed-symptoms/show/2882171#post_13852244
) , things have developed a bit more since then.
- Major hypoglaecemic incident (following a bachelor party - this seems to have been the starting point for all my probems)
- Muscle twitches and spasms
- Heart palpitations, chest pains
- Really weird feelings before, during and after eating
- Burning / tingling sensations throughout my body - kinda "hotspots" - these would move around frequently
- Constant headaches
Other symptoms (cant recall when they started)
- Excessive thirst
- Very sensitive to light and sound (comes and goes)
- Strange sensations as if my blood is stinging me
- Diagnosed with Calcium deficiency, given one months worth of tablets
- If memory serves, this did make some of the symptoms marginally better
- Fatigue. Being on my feet for any period would often make me incredibly tired. For example, being on my feet at work for 30 minutes left me so tired that I had to sit down. I felt exhausted for about 5 days afterwards and was unable to function as normal. I didn't even have the energy to sit in my chair at work, so was pretty much confined to bed / sofa.
- Cardiologist told me to STOP taking magnesium supplements (I had been taking them sporadically for about 3 years, not heavily. This was due to a belief that they would help me with muscle cramps (calfs) whilst exercising).
May 2016 --> Summer
- Fatigue became gradually worse. At first it would only seemingly trigger if I stood up for too long, I'd have good weeks and bad weeks but was generally managing to work full time (office job, sitting down).
- Later summer fatigue became almost a constant, too tired to work more than a few hours a day, and that was a major battle.
- If memory serves me correctly, I believe the heart palpitations and muscle spasms etc had died down quite a bit.
- Hypoglaecemic symptoms persist to this day (if I make a mistake with my eating regime)
- Diagnosed with Vitamin D deficiency in June, given tablets for "long term"
- It occurred to me that fatigue had only really started since stopping magnesium supplementation. I decided to start taking them again to see what would happen.
- Within 12 hours I felt my energy levels improve. They have improved gradually since, to the extent that some days I feel like I almost have enough energy to go do some exercise!
- Noticed on 1st day of Magnesium that my heart palpitations and muscle twitchiness was back. Makes it incredibly hard to sleep.
- Excessive thirst has got even worse - some nights I'v had to get out of bed due to feeling completely weird and extremely thirsty - I have to drink about 4 or 5 pints of water and sit up for 10 minutes to feel "safe" again.
- Dizzyness during the aforementioned episodes.
- Noticed my tears / eyes watering feels very salty and is burning my eyes.
- Mouth tastes very salty.
I have since stopped the magnesium supplements again as the above symptoms are most unpleasant. I feel like they may be slowly reducing now.
- Have seen Neurologist, had MRI scan - everything fine
- Have seen Cardiologist, had heart rhyhtm recording and echocardiogram - everything fine.
- Have seen Endocrinologist - he had me in hospital for 24 hours without food - bloods were normal (no symptoms that day!)
- Have had 5 sessions with Cognitive Behavioral Therapist; got a little benefit mentally from this, but not much. Currently waiting for Counsilling referral as she believes this would be more beneficial.
- GP believes I have Chronic Fatigue caused by stress (have had a very stressful time the past 14 months)
- I have seen Chronic Fatigue Unit; they didn't know if it was CFS or not, and have referred me to an Immunologist that specialises in Fatigue.
- Nothing else has come to light from many blood tests, including electrolyte levels.
So..... anyone got any ideas?
The recent change in symptoms when restarting magnesium has me thinking that there is something wrong with my electrolytes, however blood tests say otherwise.
I'm struggling to believe it's CFS when I noticed such a quick improvement in my fatigue from taking magnesium.
Completely at a loss as to what to do now, I feel like if it's not CFS, then the doctors are never going to find it as I don't even know what kind of consultant I should see or what kind of tests to request.
Any advice would be much appreciated... and sorry for the extra long post :(