Hi, I have been struggling with a PAINFUL throbbing in my chest, SOB, dizziness, fatigue since the end of May. I have spent alot of money on test, and the rabbit hole just keeps going deeper. So far, Ive had 2 chest Xrays, an echo/stres, Bld work, 2 EKG's, a 48hr Holter Monitor, and been to 2 doctors, the ER room, and a cardiologist. Most of my doctor visits, I have not felt listened to or believed about the intensity of my symptoms, since all the "hard data" isn't showing any clues, other than what it is NOT. The Thump in chest worsens when i lie flat, and i must sleep elevated. I can do very little activity and my head builds pressure when i bend over. The pain is specific to the left side of my sternum about 3" to 4" long, and sometimes thuds through my back to below the shoulder blades. I'm really having a hard time. If anyone has a diagnosis and has these symptoms, PLEASE tell me what tests to ask the doctors for. Thank You! My symptoms will worsen with ANY activity and I can keep them "manageable" if I stay on my couch! I have a friend that is a doctor and I got her to listen to my heart while i sat up and then lying down and while it was "kicking me" (this is the best way I can describe sensation). She said I have a distinct sinus arythmia and my heart beat lowers considerably when I lay down and she HEARD the kick it does in my chest (which also brings pain). Im interested in hearing from anyone who has an idea. Thanks again!
the problem originates above the shoulders therefore you need MRI brain/spine , cervical and dorsal.
if your doctor thinks there's a conduction problem with your heart of Neurological origin he'll send you to a Neurologist do the full work up for autoimmune diseases.
Prednisone is used to treat some autoimmune disorders, but not all. it is counter-productive in some conditions. it will be interesting to know whether it will help or make you worse.