Perhaps a skin biopsy would help here and could lead to a right diagnosis.
Best wishes.
Thanks and I'll post when I get more answers. It's not fun being what drs call an "interesting, unique, wierd" patient. Few want to spend the time tracking down rare conditions. Hopefully the vascular guy can make some heads or tails out of whatever "it" is that I have.
My good wishes and do keep me informed.ok?
Thanks again. I went and researched it and am happy to report that nothing I'm taking has that in it. I am going to see a Vascular Specialist on the 31st who has extensive training and experience as well as published a number of articles in medical journals. I read some of the abstracts from them. I've been told he doesn't have much of a personality (surgeons generally don't) but he's good at what he does and that's what I care most about. I'll get him to talk to me.
Ergot poisoning is the other to look into.Any medications you had which are related to the alkaloid.((Ergotamine,Bromocriptine)
contamination of food etc.
Regards.
Thanks for that suggestion. I looked it up and the blood test for it was already done on me and was normal
If you have any other suggestions I welcome them. Called my Immunologist yesterday and talked to his nurse about my symptoms, as well as faxing a copy of my original post here. She was very concerned. I will be getting a call from her sometime Monday. The Immunologist was the one who identified the problems in the first place, so I'm optimistic that he will track it down.