Hi all,
I'm currently very ill and in a poor condition with symptoms that no doctor seem to be able to explain so far. It all started about six months ago after a dinner at a Lebanese restaurant. Below is a timeline of all of my symptoms and how they have progressed into what I have right now.
I have been seen by multiple doctors in 5 different hospitals and have run a dozen of examinations. These include HIV/AIDS, Hepatitis A & C, Sjogren, PET/ CT scan entire body, CT of the abdomen, DNA test for HFE gene, EMG of muscles, multiple gastro's of the stomach and duodenum, multiple ultra sounds abdomen, chest X ray, colonscopy intestines, endoscopic ultrasound of the pancreas and bile ducts, MRI small intestines, MRI brain and multiple regular blood checks. Nothing found so far except for low Vitamin D level, very high calcium and iron and a bit higher ALAT level than usual.
I try to keep my energy level up with a combination of a healthy diet, going out and intake of a bunch of vitamins, supplements and herbs, including:
* Vitamin C, D, A
* Cod liver oil
* Curcumin
* Milk Thistle
* Collagen Hydrolysate
* Zinc
* Probiotics
* Chlorella
Does all this sound familiar to anyone of have any ideas of what this could be?
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Mid January - mid February
* Sharp pain attacks in abdomen after eating
* Pain around shoulder blades
* Irregular stools, undigested, black pieces
* Feeling full after a few bites
* Slow passage of food through stomach
* Loss of appetite
* Dizziness
* Several pass outs
* Weight loss: 6kg (original weight 75kg), regular food intake
Mid February - end February
* Nausea
* Pain in thorax and chest
Begin March - mid March
* Nausea
* Intense pain in abdomen
* Bloating feeling in intestines
* Burning pain in hands and feet
* Stiff limbs and hands
* Rigid muscles
* Burning and sharp pain on chest
* Obstipation (avg 5-6 days), blood, fleshy pieces and mucus with stool
* Burning pain in throat
* Pass out
* Warm and cold sensations entire body
* Feeling that my intestines are sacking
* Weight loss: 4kg, 2000-2200 kcal food intake via feeding tube
Mid March – now
Muscles and joints
* High loss of muscle strength and volume, muscles very loose
* Weak, painful and cracking joints, difficulty with walking
* Pain in back and head when lying down or sitting
Eyes, nose, throat, mouth
* Swollen and burning tonsils white spots, warmth seems to worsen this symptom
* Lips constantly peeling, yellow crusts, sticky, swollen, burning pain, water seems to worsen the peeling
* Fissure in middle of tongue, enlarged tongue, burning pain, sticky tongue, white coating, puffy tongue with teeth marks along the side
* Dark blue veins clearly visible under tongue and under lips
* Swollen uvala
* Swollen inner cheeks, white patches
* Receding gums, frequently bleeding, frequently swollen
* Thick saliva with strings
* Burning pain in oral cavity
* Burning pain in nose
* Burning pain in ears
* Burning pain in eyes, noticeable red veins in eyes
Skin, hair and nails
* Body skin constantly peeling, water seems to worsen this symptom
* Skin has become very thin and fragile, sticky after water exposure
* Hair loss, thinning and fragile hair
* Receding cuticles, water seems to worsen this symptom
Other
* Slow healing wounds
* Sleeplessness, not slept for months
* Low energy/ fatigue
* Lowered body temperature (avg 35)
* Lowered blood pressure (avg 100/60) and heart rate (avg 55-60)
* Dizzy when standing up
* Mushy stools, regularly diarrhea, sometimes food not well digested
* High urine production
* White foam in urine
* Weight loss: 3kg, normal food intake, about 2400 kcal