I began having these episodes in 2005, and have had a total of seven all together since then. My last episode was last weekend, and before that I hadn't had one for about 3 years. I have been to neurologists, I've had 2 EEGs, 2 MRIs, an EKG, and some other tests that I can't even remember. I have never come close to any type of diagnosis, and eventually gave up. I had initally written the whole thing off as an unpleasant side effect of being on Paxil, since that's when it started. I gave up the Paxil 3 years ago and hadn't had a problem again since last weekend.
The episode starts out with extreme dizziness, room spinning, and I am either forced to sit down, or I fall down. At this point I will pass out, and have what observers describe as a seizure, however I am not 100% sure what it is. It is definitely a convulsion or spasm, and usually only happens in my hands, or arms and legs, and lasts about 3 min or less. When that stops and I am responsive again, I am completely out of it, and I will start to heave and eventually vomit although there have been times when I never vomit, just heave. I feel sweaty, and I am extremely pale. After vomiting, my color starts to return, but I am unable to stand up or move around for the next few hours as I feel extremely weak and just generally out of it. The people who have observed me having these attacks have told me that I'm completely unconcious, however to me it feels like I am not because I can still hear everything everyone says and feel like I might even be talking back, or that I"m trying to talk but can't. This last episode, I lost control of my bladder, although this was the first time.
These attacks happen at completely different places and times, although I think that it's possible that consuming alcohol COULD be a factor that may bring the attacks on, however it is important to me to emphasize that even though 5 out of 7 of these attacks happened when I was consuming alcohol, it was no more than one or two drinks and not nearly enough for me to feel even slightly intoxicated. I am not a heavy drinker at all, and 95% of the time i do drink nothing like this ever happens. When I feel the attacks coming on I usually just feel the increasing sensation of dizziness, and the need to sit down, but it happens so quickly that sometimes I don't make it that far. Sometimes it happens on an empty stomach, sometimes I have just eaten a meal, sometimes it's in the afternoon, sometimes at night.
I have looked into the possibility of vertigo, or even Menier's disease, but the symptoms don't match up 100%. I do have ringing in my ears very frequently and I do have frequent mild dizzy spells, but never put the two together. I am completely losing hope that I will ever figure out what is causing these episodes, especially now that I know it wasn't the paxil.
I am 27 years old, I am on birth control (wasn't when this started), and no other medications. I am not pregnant. Any insight would be beyond appreciated.