Hi I am 35yo from England (male) some of my earliest memories are waking up with excruciating pain in my knees and ankles this has persisted as I have grown, but right up until I was in my early twenties I was told it was growing pains, I got black bruising around my ankles and was told it was soft ligaments.
My joints click always have but they have become progressively more clicky and grindy as I have gotten older to the point where near enough every joint in my body clicks and grinds, more over if I don't click them periodically the feel stiff and agitated.
I struggle to explain to people how it feels because although I get pain in my joints it is normally not that bad, I grew up with it and am used to coping with it, the real issue is that the sensation I get in all of my joints is unbearable, it feels like they are drying out, like they're brittle, filled with sand or grit, or bone dry leaves, it is like the sensation you get from irritable leg only in all of my joints,I am constantly aware of every single joint in my body I can feel it inside all of my joints all of the time, when it is at its worst it feels like my teeth are tingling or vibrating and I can barely concentrate.
I have been to my GP's sporadically every time it is x-ray blood test and nothing unusual to report so go away, this year it has gotten so bad that I pestered, they said well it's nothing we can diagnose here so we wwill refer you to the rheumatology consultant. (one plus in their column is they told me to take 600mg ibuprofen 3 x daily which has taken the edge off just a little and co-codamol does likewise for the pain)
I went to the rheumatology consultant today tried to explain it, he looked at me like I was a lunatic, after a brief examination he said well its good news it's not rheumatoid or osteo arthritis, I will test for gout and your calcium levels bu *** won't be that either, you don't have a disease I can diagnose maybe it's just how you are.
So here I am I asked him where now and will ask my GP likewise but am really getting to my wits end the only things that come close to my symptoms are Lymes (although no rash) and decompression sickness!! can't see that it will be the latter and I don't live in a part of the uk affected by lymes although did holiday in the south of england as a child, I am thinking or writing all of this out in full, if only there was someone out there above the GP that I could send it to I only wish I was rich enough to go private and demand this test and that until they found something!