I had a severe SJS attack in '99 that I healed from, but have since had a heat stroke, multiple idiopathic anaphalaxis attacks with massive facial and oral swelling, and chronic urticaria that resulted in the loss of my job. I used to have immunosuppressant therapy with massive steroid doses that would alleviate the attacks for up to 2 years at a time. This last time I was sent to a specialist who advised that I may have about 3-5 years left. Why? Are the attacks going to get worse? I used to be able to avoid my triggers, but now it happens for no reason and I'm not doing better on the urticarian diet. I also have night jerks all night long that has run my hubby into another room. Is this a new sympton or something neurological? Some of them are so strong I 'jump' from the bed when I'm sleeping and wake up so exhausted and sore. I stopped taking all of the meds for anxiety and depression months ago with no help. What's going on?