Have you ever considered lyme disease?
I have been in terrible pain for 4+ years, my limbs, lower back, neck, hands and feet are all effected. Doctors could only tell me they suspect fibromyalgia. I thought this diagnosis was lame and went searching for answers. I finally ended up at a lyme disease specialist and got diagnosed with lyme disease. I had 4 tests for lyme taken prior to seeing this lyme doctor and they always came up negative. He tested me through a lab that specializes in lyme detection. This lab check all the markers for lyme, which are 16. The standard test that the CDC recommends for lyme detection only tests for 3 markers out of the 16 and two must show positive to have a positive test. You do not have to have a bullseye rash to have this condition or any rash for that matter. My husband, my son and myself all suffer from lyme disease and never had the typical rash. You can get it anywhere in this country and many other countries as well. My lyme doctor told me that the pain, fatigue and all other symptoms I suffer with is a sign of 3 different infections. They are babesia, borrelia and bartonella infections. I would look these up to see if your symptoms are similar. You can go to I.L.A.D.S and find the information.
i agree with donjoe341...i've had lyme since the '80's and your symptoms are certainly consistent with it (they're also consistent with a wide range of conditions, but it can't hurt to get checked out). it took 4yrs before i found out what i had, so i know how frustrating it is to be so sick and not have any answers, but don't give up and keep on doing your own research...doctors don't always come up with the answers (obviously). i wasn't tested for lyme until my mother read about it in a magazine and told my pediatrician "test her for this...this is what she has!" sure enough, i tested positive....but like donjoe said, you can have a false negative so you might not want to rely too heavily on the results of a single blood test....good luck and i hope you find some answers soon!
Welcome to the MedHelp forum!
I understand you have undergone several tests. Since I cannot examine you and know other related conditions you may be having, nor is a detailed history possible on net, I am listing the various possibilities that should be looked into.
Unexplained aches and pains coming on and off could be due to fibromyalgia, chronic fatigue syndrome, rheumatoid arthritis, lupus, Crohn’s disease, H pylori infection, anemia, liver disorders, diabetes, hypothyroidism, Vit B12 or Vit D deficiency and due to calcium or magnesium deficiency. It can also be due to sleep related disorders. Please consult your PCP to run tests and examination to clinch a diagnosis. Take care!
chronic lyme disease can be the cause of all of the conditions the doctor has listed. Lyme disease effects the way our body absorbs nutrients due to swelling and digestive disorders, along with effecting our hormones, blood sugar, thyroid, vit D and magnesium difficiency, and neuropathies. It can be a fast or slow progression. My family was struck by lyme disease and we all ended up with all of the above after having symptoms begin over 10 years ago. Ten years ago our doctors dismissed our minor health issues as IBS, Lactose intolerence, and stress. Our doctors now can not dismiss the problems we have because it has effected our entire way our bodies function. Looking into lyme disease would be a good place to start. Doctors never checked for this and would likely never check for this. My son contracted lyme when he was 10. During his teenage years it was difficult for a doctor to understand that the child suffered from chronic fatigue. They kept blaming it on being a teenager because his blood work kept coming up normal. He now is fighting a difficult battle. He has been diagnosed with insulin resistance at 19 along with scoliosis at 15. We believe the scoliosis happened because he was so low on vitamin D during his puberty years. I hope you at least check into this. Good Luck
What donjoe341 writes is very true and I too have been chasing around symptoms in order to find what I'm dealing with. I have gone to a Clinic that treats Fibromyalgia, however this is just a trademark name for what it really is. They start up by trying to stabilize the patient depending on how long you've been affected by this. I told the doctor that I started up with my symptoms back in 1988 and by 1991-92 I had definite signs of and enviromental disease, which back then nobody knew what was wrong or what to give you for it. I was gradually given so many medications for all the damn symptoms that i was a prescription addict and while trying to operate a home based business which was a hair salon that was adding to my toxic level, I became sicker over the years. I was able to stop all medications by the year 2002 and started to find a way to manage life once again, however the underlying condition lay dormant, but not for long. It showed itself as sciatica and then moved on from there. Nervous system was definitely affected and nobody ever thought to check into hormones. Years go by and my Thyroid has been causing me problems and my doc changes the dose. Again 2 more years and my Thyroid is causing me problems as well, as IBS, Heart, Acid Reflux, Migraines, etc. Again we look at the obvious and even a Endocrinologist was stumped and I moved on to other specialists. Finally I developed a cyst on my left ovary and required surgery before this became cancerous that was January of 2011. It's been over 2 years of chasing down symptoms to no avail and I'm now feeling worse after my total hysterectomy. I definitely required hormone supplements and I was given the Estrogen Patches, which when I was tested in the States, cause I live in Canada, the patch was not giving me any Estrodiol at all. I went to a Clinic in Seattle Wa. and had a full battery of test run and this cost me out of pocket and found that I have a lot of hormone deficiencies. So, right from the start they gave me an I.V of a powerful antioxidant with Vitamin B12 and a cellular rebuilder, NADH. From that time, I was shown how to inject this and since Feb. 22, 2011, I have been giving myself these shots and also been given a whole regime of supplements for my body. This is the first step to getting the body ready to be able to handle the upcoming infections, viruses and bacteria that need to be dealt with. I have had a UTI and been treated for it and now will proceed on with a metal toxicity test. So, the path is not an easy one as Donjoe341 had mentioned before me. The longer one has had this the more chronic it has become and the process is gruelling, however it needs a very slow approach as the body cannot handle it. I advised my physician in Seattle of the changes that were made for me here in Canada and how my Thyroid medication was altered at such a rapid pace it threw me for a whirl. So I set the foundation for this doctor to help me at a pace that my body was able to cope with, cause the sensitivites are extremely high and have somewhat altered since beginning this treatment in February. I've only just begun and I have a long way to go. We have dealt with Candida yeast overgrowth which is one great reason why one has to stay away from sugar. I cannot eat sweets at all and when I do, I pay for it dearly with a migraine. I did it just last week, I went to my fridge and broke off 2 pieces of dark chocolate sent to me from Herhsey, Pa. and I ate it. The next morning I had a headache which was a low grade migraine, so again I proved to myself that I cannot eat anything with a high sugar content. I use Stevia in my coffee and I have also removed asparatame from my diet as well. I used to chew a lot of gum as I was a smoker years ago and since quitting, I went to Nicorette gum then after a year changed to Excel, but I noticed that each time I chewed this gum, I had this strange sensation in my lips and tongue and my entire mouth. I switched to a natural gum and no more symptoms. This diesease is one of complete change of living style or simply take a pill for every sypmtom you have but this will not work. The source must be revealed and deal with it at the root cause, otherwise eradication from it will never transpire. Read the book called" Beat the Sugar Addiction". This will open a lot of doors for you all. GOOD LUCK
A related discussion, What else can it be?