Unfortunately, for the past few years I have had the weirdest symptoms. They generally come and go, almost like flares. I will feel like crap for weeks or months and then go back to normal.
Currently, I am dealing with swollen lymph nodes and parotid glands, burning nose, itchy ears, super dry, itchy eyes. However, in the past I have dealt with pretty significant numbness and tingling in my limbs, twitching, back spasms, exhaustion, memory issues, fluctuating blood pressure (ie: some days it’ll be 97/60 and the next day 157/100), floaters in my eyes, intolerance to heat. Plus, a very significant pain in my lower back - it’s pretty intense when it happens. Almost feels like there is a lump in my spine. Chest heaviness when I bend down or deep breathing. Shortness of breath. Super dilated blood vessels, which actually caused my dr to think I had pelvic vein congestion- which resulted in a hysterectomy and I still have one ovary remaining.
This all started in 2018. I had a terrible UTI and then after, I no longer produce ear wax, I don’t need to wear deodorant because I don’t perspire, my face- which used to be super oily has now become so dry that I have flaky red patches. Also, I get these lesions on my body, that based on research look like sarcoids. Also, I retain urine and now have been diagnosed with IC.
The tests that I have had were all the thyroid tests, an MRI, ANA assay, c-reactive, sed rate, RH factor - pretty much most of the rheumatology tests, B-12, CT scans, chest X-rays. EKG and cardio gram. A vascular ultrasound. Everything was normal except: the chest X-ray shows calcified lymph nodes, the CT scan shows multiple calcified granulomas and my B-12 was like 2,330 but the Dr found none of this concerning.
I am just not sure what else I can do or what I should be looking into. Also, I am a 35 year old female. Any suggestions or guidance would be helpful.