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Avatar universal

I have been dealing with symptoms that the doctors cant figure out.

I'm 15 years old and have been dealing with weird issues since I was 7. When I was seven I was getting bad daily headaches, I was diagnosed with early puberty and an overactive thyroid, nothing ever came from this diagnoses.

A couple years later when I turned 13 I was still experiencing daily headaches. Then one day I get the worst headache of my life I felt dizzy, slurred my speech, and couldn't accomplish a simple daily task, I get a full workup, blood test, MRI, nothing showed up, so they sent me on my way. Four months later my migraine finally went away.

But I still had headaches, and as a plus migraines of the same caliber would randomly show up for four days or more, this is around the time where I started developing bouts of dizziness like the world is zooming out and I started falling over randomly. I didn't get checked on this because it was becoming a normal experience for me.

After I turned 14 I started getting some serious fatigue, and I started randomly shaking, the shaking is always accompanied with the feeling of extreme weakness, sometimes my legs feel like bricks out of the blue and I do a weird shuffle kinda like I forgot how to walk but my best explanation is just that my legs don't "listen."

But now lately my left ear has had random ringing which is always accompanied by slight hearing loss for a day or two, plus my muscles have started twitching a lot more than they used to, and just today my arms developed this ticklish sensation along with an extreme weakness in both my arms which is still going on while I am typing this.

Does anyone have any ideas on what this may be? it's getting extremely tedious and I'm starting to lose hope.
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Avatar universal
That weird ticklish feeling has now spread to my whole torso, and now I am now having a weird twitch on my left side under my ribcage, and my ear is stuck ringing right now
Helpful - 0
Avatar universal
Have no idea what's going on, but this is something medical specialists have to look at.  I'm sure someone will speculate, but we're not doctors here and you're presenting some very complicated symptoms.  At first it sounded like cluster headaches, which are a vicious form of migraine that happens a lot.  But you go on to suggest things that sound very complicated.  Have you seen a neurologist?  
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Avatar universal
I have not seen a neurologist, nor have I ever been told that I should see the neurologist for the 7 times I have visited with this crap. Right now my mom is scheduling an appointment so I can get another checkup, she is branching off my hormone problem that I had when I was 7 to start with. Maybe I can hint a neurologist if my blood test are still clear, I hope to keep you updated.
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207091 tn?1337709493
Definitely see a neurologist. Don't hint at it - ask outright for it. You're 15, and old enough to be listened to by your doctors. Even if it's all triggered by the hormone issue, a neurologist needs to be the one to evaluate to evaluate all your symptoms.

Good luck, and keep us posted.
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Avatar universal
Well they will be able to get me in sometime next month or a bit earlier, they'll call when they are available for one.
Anyway I've started making a laundry list of symptoms and I am fear mongering on google.
So I've just got one question right now, for a couple of years now I have also had a problem where I randomly freeze up and can't move I can hear and see but cannot move. I always act drunk and cannot think straight after these episodes happen which is at least 8 times a day. Something screwy for sure
Helpful - 0
Avatar universal
Make a food log and see if there are any connections between what you eat and your headaches. Some reactions to food can take a couple days to start.
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Avatar universal
Maybe look into disautonomia
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Avatar universal
Well they think that they found something, it is pressure on my brainstem causing deformity from a twisted vertebral artery. Not many cases reported at all, but it's cool to know what has been causing all of this stupid crap over the years. I'll be seeing Swedish to talk to one of their neurologist. Hopefully have it resolved because It may be causing my wonky BP and weird changes of symptoms. I was tested for autoimmune diseases because I had similar symptoms that i've been experiencing for a while now. Thing being that I have had lab test which have detected no inflammation going on. But I do have trace amounts of anti-dsDNA but it is still in the negative range. My question is does this increase my risk of dsDNA dependant disorders.
Helpful - 0
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