You are a treasure! Thanks so much for not only giving me ideas I never thought of, but taking the time to communicate it to me. The information was both practical and compassionate. I wish you were a doctor! I will definitely try all the things you mentioned. Thank you!!!
You are still very young, and it is not good that a doctor just dismisses things and says carry on with the physio. It's like brushing you under the carpet without even trying to find out what the problem or problems that you have to be able to find out if there is something that will be able to help you.
You need to push for tests and answers and by what you wrote, it does not appear that you have even had any tests done to find the cause of your leg and hand problems.
Physiotherapy is important for you so that you do not lose muscle mass and get weakened by this. Another good form of exercise which may be suitable for you is hydrotherapy. If there is a hydrotherapy pool in the physiotherapy department, the pool water is much water than that in an normal leisure swimming pool and there are also hoists if you are not able to walk. Ask your physiotherapist whether hydrotherapy would be suitable for you and if you can be referred for this.
Get your vitamin D levels, the iron and B12 checked out by blood tests before taking any supplements. Overdosing on these can cause problems that you would not want.
Eat a healthy and well balanced diet with lots of fresh fruit and vegetables. Eat lean meats and fish (if you are not a vegetarian). Be careful with regard to the types of fats that you eat. Cut out or cut down on sugary (cakes, biscuits, sweets, chocolates, etc.), processed and junk foods. Cut out or cut down on sugary and fizzy drinks. Eat brown high fibre bread instead of white. Drink water. 2 litres a day is usually recommended, more if you sweat a lot.
Get booked in to see a doctor at your surgery (not the one with the attitude that it does not matter what you have) and ask for tests and imaging to be done to get some answers.
I know exactly what it feels like and have learned that if you don't ask or tell the doctor that you are not happy, you may be missing out on new available treatment or alternatives to ease your discomfort and pain, even if there is no cure.
Best of luck. Let us know how you get on.
Wow! You've given me a lot of good advice! Thank you. The vitiman info you mentioned gives me something I can try regular vitamins for now. I don't take any now. The idea of blood work sounds so simple and non-invasive...basically great! Also, thanks for understanding and supporting getting a diagnosis. It is so FRUSTRATING not having the doctors feel I need one!
Hi! Thank you so much! It makes so much sense. I am truly glad your daughter was able to get a diagnosis. It is so hard not to know. And I hope she gets the best possible news on the other things, too!
You should make an appointment to see a different doctor.
It does matter what condition you have, because it may be one that you could get treatment for.
It certainly would be a good idea to get checked out for the conditions that rineal mentions.
The problem with your fingers and your hands may be connected with what you have on your legs. The finger splitting may be a Vitamin deficiency or to do with psoriasis.
You should ask your doctor to do blood tests to see if you have an autoimmune disorder like mentioned above and also psoriatic arthritis.
It would also be a good idea to get a blood test to check your iron, Vitamin B12 and Vitamin D levels.
Make an appointment with a different doctor who can at least run some blood tests.
I'm sorry I forgot to mention the Doctor did take a look at her cuticles fingers and under her nails as another sign of the disease. Please see a doctor for proper diagnosis. As were found out right away just have to find the cause
Hello my daughter experienced same issue took her to the doctor they did blood work and found it to be Raynaud's disease. She is having blood work performed and the will see if it may come from Lupus, MS or any other autoimmune disease. I was told it was when the blood vessel are constricted the circulation is cut off which brings the color, numbness and sometimes cold feeling