I am so glad to hear that after 2 1/2 years that you are finally getting some answers, WAY TO GO!! I too have a sick 8 yr old son who has been sick for the last three years with doctor after doctor having no clue as to what is wrong. I just could never give up on him and to his day I worry sick because I cant get the doctors to understand....I am with him everyday, I know his behavior, I know that his body is different but like you his labs and MRI and CAT Scan have been normal. He is 126 lbs at 8 years old and started gaining the weight at the end of kindergarnter after he had tonsil, adnoid, tube surgery. He has bowel problems, behavior problems (lack of focus, talking, sitting still), bloating and swelling (sores arms and leg do not heal) I know he is different than before but with the doctors I just dont know anymore....My faith in doctors is going sadly. But you give me faith...it is so great to hear that you got it moving and will finally get the answers you need. God bless you!