Avatar universal

Neurological issues, no answers. Scared!

Woke up one day a few months ago with dizziness, serious balance and walking issues, tinnitus, severe neck pain on both sides, peripheral neuropathy type symptoms, extremely distorted vision where everything seemed smokey and surreal, worst headache of my life on my left back side of my skull, muscle twitching everywhere and I mean everywhere, left calf and ankle numbness, erectile dysfunction, urination issues ( felt weird and sort of numb) and everything seemed so damned hard to do like taking a shower and brushing my teeth. It was serious effort. I felt as if my soul left my body and was having a serious bad acid trip or something. All my motivation and drive has been replaced with apathy and insouciance overnight. It was extremely concerning to me since I typically run 2 miles a day followed by 1.5 hours of weight training, so those little tasks are typically a nonissue. I was completely awestruck tbh. I thought I had a stroke, but after a CT scan revealed “no abnormalities” I guess I was wrong. Thereafter, I’ve had a cardiovascular nuclear stress test, visited an ENT, optometrist, immunologist/allergist, endocrinologist, urologist, two neuro and 1 orthopedic surgeons, had 2 cervical MRI, EMG/NCS, all kinds of blood work drawn and other than slightly low testosterone, everything is clean.

My GP said it was anxiety/depression so I tried about 6 different SSRI/SNRI to no avail. To this day I have all the same symptoms and no one can put a diagnosis on it. I have not been able to work out, drive and mundane tasks are extremely difficult to perform, like going to the bathroom, making food and such. My job is suffering as is my family life. I don’t want to do anything, but research and sit in the couch. I’ve developed anxiety and horrible insomnia in the process. My life has been turned upside down and I’m struggling with hopelessness since no diagnosis has been identified and no treatment plan is in place. I’ve actually been feeling like my life is over and nothing else to look forward to. Wtf?

Background: Im 48 years old, very athletic, eat healthy, great family, great job, no history of depression, no major negative life events lately, don’t drink, former smoker, but took adderall for a few years, but it’s been over two years since I stopped (60 mg per day). Not sure if that’s the issue or not.

I’m lost and not getting any better. It’s putting everything I have at risk.

Any thoughts or suggestions?
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Avatar universal
Have you thought about getting your eyes checked ? There's a condition called BVD binocular vision dysfunction and it can cause many of the symptoms you have mentioned.
You need to see an eye speacialist who specialises in BVD as normal eye tests won't pick up that condition and it's not commonly known by General practitioners.
It's a serious medical condition that causes symptoms that a very diabilating.
Look into this condition.
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Avatar universal
Sometimes CT scans doesn't show auto immune diseases like MS .  Pls get MRI that revela lot more
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Avatar universal
Have you seen a Rheumatologist who specializes in auto-immune disease? Was your CT of the brain? Did you get a brain MRI? Given your symptoms seem to have a neurological aspect to them, I would see a top neurologist from a top institution. Which state do you live in? Also, contact Mayo Clinic if possible.
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I’ve seen an Immunologist. Don’t think I’ve seen a Rheumatologist. CT was of my brain, no abnormalities. I asked about a brain MRI, but several drs said it’s not necessary due to a clean CT scan. I live in Georgia and I’ve seen 2 neurologists. They said BFS, but there’s more to it in my opinion. Thanks for the suggestions.
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