My 14yr old son has been sick for a year now still trying to get a diagnosis. My son contracted the Adenovirus last year that triggered something in his immune system keeping him sick. We have been to numerous specialists. His symptoms are chronic fatigue, nausea, lack of appetite, body pains, lightheaded, sore throat, congestion, and fevers. He lost over 20lbs almost having to get a NG tube but was able to slowly able to gain weight back with prescribed medication from GI and Katefarms shakes.
His labs are consistent with low WBC count and low neutropenia count.
Mono has been ruled out
Lyme disease has been ruled out
Thyroid issues have been ruled out
Crohn’s disease has been ruled out along with celiac and UC( I have Crohn’s disease)
Immunology testing has been done (nothing significant has stuck out for diagnosis. Waiting on labs next week to Pneumovax he received to see how his immune system reacts to vaccine).
His pediatrician wants him to go see another hematologist as the first one he saw basically wiped her hands clean after 2 visits, one set of labs done, and just said it doesn’t have to do with hematology.
He missed attending majority of school last year having to receive Homebound Health Services through his school due to his immune system constantly being down constantly contracting anything that was going around in school. He was feeling a little better over the summer so I let him attend school this year to only have him get sicker again with same symptoms returning in full force.
Please if anyone has experienced this can you please let me know what the diagnosis was.