Undiagnosed Symptoms Community
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Avatar universal

Please help- something seriously wrong- no answers!

I came to my physician with left foot pain, weak ankle, limp. Ddimer 0.79-  had ultrasound of left leg and negative for DVT. I have been having an on and off again sharp pain in back ( in vicinity of last rib) off and on again for awhile. After Ultrasound of left leg was negative- i was free to go. Vascular doctor told me not to worry about it since DDIMER can be thrown off for multiple reasons- such as inflammation- My ESR is normal at 12, I have no white count. All Blood counts normal, CMP completely normal. I have also had near constant aching near groin in left ovary that has persisted for year + ( negative on u/s for enlargement or cyst- fluid in culdesac but not so much as to be abnormal for a female. My knee has been constantly aching. It is like there is some process going on with my entire left side.I have no energy.  I am baffled and also worried that they are missing something and i am at risk for stroke or PE- or that is something else going on with me  (cancer, spleen? )that they are completely overlooking. Thanks for your help!
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Avatar universal
There are a couple of left sided Vascular Compression Syndromes that can cause the problems you’re having. May-Thurner Syndrome (Left Iliac Vein Compression) can affect the left leg. I was recently diagnosed with this condition. It’s usually only diagnosed if you develop DVT’s, but most people won’t develop blood clots with this condition. I never have. It can also cause extreme fatigue, anxiety and depression among many other problems.

The other condition is called the Nutcracker Syndrome (Left Renal Vein Compression). It can cause back pain around the location that you’ve described.  It’s can also cause pain in the groin and left ovary due to reflux of blood from the Left Renal Vein down through the Left Ovarian Vein. It can also cause Vericoceles in men and Pelvic Congestion Syndrome in women.

Very few doctors understand or have ever heard of these conditions so they are rarely diagnosed. I would recommend joining a Nutcracker Syndrome or May-Thurner Syndrome Group on Facebook.
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