Aa
Please help me figure this out.
Please somebody try to help me figure this out. I will take any opinion and I am desperate for answers considering doctors have absolutely no clue what is going on.
2 ½ years ago I started with a rash all over my arms, torso, and legs, doctors thought it was eczema and sent me away with cream that did not work. 2 months later it started going away on its own. I then started with a sore throat on the right side that wouldn’t go away. Although doctors did not understand it they put me on antibiotics to try and see if that would help. I then started with sinus infections one after another despite antibiotics. About 2 months after that I started to feel a little better and I just finished all my antibiotics and was returning to normal. I decided I was well enough to go out and have lunch with a friend. We were talking, and everything seemed fine until I felt 2 pops on the right side of my head. I immediately started getting double vision along with numbness of the arms and I began to feel like I was going to pass out. I excused myself and left and as soon as I got home I thought that I just needed a nap. 2 ½ years later and I’m still a mess and nobody can figure this out.
My symptoms right after the incident:
Blurry vision
Immense head pressure that seemed to migrate
Light and sound sensitivity
Fatigue (all the time)
Anxiety (the anxiety crept in because I couldn’t understand what was wrong and why my body was not getting better)
Air hunger (almost mechanical breathing)
Lightheadedness
Dizziness upon standing (or just all the time)
Numbness of my hands, mouth
Jaw pain
Constant yawning
White tongue
Disassociation (symptoms always made me feel like I was viewing the world form the outside instead of living in the moment like everything else)
Brain fog
My symptoms now:
Brain fog
Dizziness
Lightheadedness
High anxiety (I am now to the point that I fear that they will never figure it out and I will be this way forever)
Blurriness
Light and sound sensitivity
Periods of breathlessness
White tongue
Disassociation (symptoms always made me feel like I was viewing the world form the outside instead of living in the moment like everything else)
I have been to every doctor you can imagine:
Cardiologist
Eye doctor
General
Neurologist
psychologist
And I’m sure a few more
Test preformed:
Every blood test you could imagine including a Lyme test (4 times) negative
Mri
Cat scans
Thyroid
Abnormal test:
Platelet count has been on the high side of the scale since this started and my wbc.
Platelet count: 411
Wbc: 10 (this came down it was usually at a 12)
I have been on a quest to figure this out because I am a mom and I can’t live this way forever. I need to be at my best and I feel that as soon as a doctor can not figure it out they just pass me off and I understand that but what I don’t understand how I can have so many symptoms and have no answers.
These symptoms are everyday apart from the air hunger which almost seems mechanical at times. My vitamin d is always low for instance I’m at a 25 right now and that’s good for me because I have trouble getting it any higher.
2 ½ years ago I started with a rash all over my arms, torso, and legs, doctors thought it was eczema and sent me away with cream that did not work. 2 months later it started going away on its own. I then started with a sore throat on the right side that wouldn’t go away. Although doctors did not understand it they put me on antibiotics to try and see if that would help. I then started with sinus infections one after another despite antibiotics. About 2 months after that I started to feel a little better and I just finished all my antibiotics and was returning to normal. I decided I was well enough to go out and have lunch with a friend. We were talking, and everything seemed fine until I felt 2 pops on the right side of my head. I immediately started getting double vision along with numbness of the arms and I began to feel like I was going to pass out. I excused myself and left and as soon as I got home I thought that I just needed a nap. 2 ½ years later and I’m still a mess and nobody can figure this out.
My symptoms right after the incident:
Blurry vision
Immense head pressure that seemed to migrate
Light and sound sensitivity
Fatigue (all the time)
Anxiety (the anxiety crept in because I couldn’t understand what was wrong and why my body was not getting better)
Air hunger (almost mechanical breathing)
Lightheadedness
Dizziness upon standing (or just all the time)
Numbness of my hands, mouth
Jaw pain
Constant yawning
White tongue
Disassociation (symptoms always made me feel like I was viewing the world form the outside instead of living in the moment like everything else)
Brain fog
My symptoms now:
Brain fog
Dizziness
Lightheadedness
High anxiety (I am now to the point that I fear that they will never figure it out and I will be this way forever)
Blurriness
Light and sound sensitivity
Periods of breathlessness
White tongue
Disassociation (symptoms always made me feel like I was viewing the world form the outside instead of living in the moment like everything else)
I have been to every doctor you can imagine:
Cardiologist
Eye doctor
General
Neurologist
psychologist
And I’m sure a few more
Test preformed:
Every blood test you could imagine including a Lyme test (4 times) negative
Mri
Cat scans
Thyroid
Abnormal test:
Platelet count has been on the high side of the scale since this started and my wbc.
Platelet count: 411
Wbc: 10 (this came down it was usually at a 12)
I have been on a quest to figure this out because I am a mom and I can’t live this way forever. I need to be at my best and I feel that as soon as a doctor can not figure it out they just pass me off and I understand that but what I don’t understand how I can have so many symptoms and have no answers.
These symptoms are everyday apart from the air hunger which almost seems mechanical at times. My vitamin d is always low for instance I’m at a 25 right now and that’s good for me because I have trouble getting it any higher.
Omygosh! This sounds horrible, so sorry you are going through this. A good friend of mine had all of these symptoms, and it turns out she has worms! Round worms, that can get into your cranial cavaties. The white tongue, is a dead give-away! Get another cat scan of your head, as well as blood tests for round worms. (* Stool test are outdated, and not reliable. ) Good luck! This condition can become very serious, there doctors here in USA are not very educated on parasites, unfortunately. I have been diagnosed with ascariasi- so many were in my lungs that they collapsed And I almost died! So, take care of yourself!
1 Comments
What kind of lyme test did you have? The Western Blot always comes up negative. Ask for the Igenex. (there is a class Action lawsuit against the Western Blot for misdiagnosing lots of people). Also definitely get tested for Bartonella. This is carried by cats. About 90%of cats carry this now. Hope you start to get some answers and feel better soon.
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