ME/CFS. ME stands for myalgic encephalomyelitis (myalgic means muscle aches or pains and encephalomyelitis means inflammation of the brain and spinal cord). CFS stands for chronic fatigue syndrome.
ME/CFS can be triggered suddenly by a viral infection, toxic exposure, anaesthetic, immunisation, gastroenteritis or trauma.
Because there is no diagnostic test for ME/CFS, diagnosis is clinical and based on the history and the exclusion of other fatiguing illnesses by physical examination and medical testing.
Co-existing medical conditions include fibromyalgia, multiple chemical sensitivity, orthostatic intolerance, irritable bowel syndrome, interstitial cystitis, irritable bladder syndrome, raynaud's, thyroiditis, sicca syndrome, TMJ dysfunction, migrane, prolapsed mitral valve.
Please, could you post the medical history chronologically? As much as possible.
Was her Strep B UTI diagnosed shortly after birth?
Any testing for deficiencies? Please state tests, test results and lab ref. values, if available
Same for hormonal panel.
"Normal" labs are meaningless or possibly dangerous , if tests are the wrong ones, flawed or results misinterpreted..
It could leave patients in perpetual medical limbo.
How about dietary habits, nutritional intake, including supplements, digestive and GI function, any meds, etc.
Hello~I am sorry you are suffering with all these issues.
Have they tested you for diabetes, the reason I ask is due to the numbness in your feet and vision issues, also the fatigue issues.
Your symptoms also could point to either Fibromyalgia or Chronic Fatigue Syndrome. I believe an Epstein Barr blood test can help rule that out however.
Candida, which is a type of yeast infection can cause lots of the problems you are having, as can food or chemical allergies. I would ask your PCP for tests in these areas as well. In the meantime, try avoiding all sugars, alcohol, gluten and wheat. If you start to feel better, then these problems could be the culprit.
If you are not already doing to, I recommend taking a good, organic, high potency B complex vitamin along with the vitamins A, D, C and E, adding a good multi mineral is beneficial as well. All these will help to strengthen your immune system and hopefully help with the fatigue.
I hope you start feeling better soon. God bless you.
Red_Star is absolutely right that your symptoms are most likely caused by ME or Chronic Fatigue Syndrome. A couple years ago I started experiencing many of the same problems that you’re having. It’s likely though that many if not most cases of ME/CFS are caused by a couple of rarely diagnosed Vascular Compression Syndromes that most doctors have never heard of. The first one is called Nutcracker Syndrome (Renal Vein Compression). Google: Nutcracker Syndrome and Chronic Fatigue Syndrome together in the same search. Several articles and case studies have shown that severe compression of the Renal Vein can cause Severe Chronic Fatigue Syndrome.
Many people that have been diagnosed with Nutcracker Syndrome get diagnosed with a second similar condition called May-Thurner Syndrome (Iliac Vein Compression). It can cause many of the same symptoms as Nutcracker. I was recently diagnosed with this condition and it can actually cause Mild ME/CFS. So it’s possible that if you have both of these conditions occurring together, it could explain all of the symptoms that you’re experiencing. Some people develop fevers and flu like symptoms with these and some don’t. Severe compression of either of these veins can cause large amounts of blood to get blocked at these Compression sites. Instead of blood flowing upwards to the lungs, heart and brain, the blood begins flowing back downwards and can pool in the pelvis and legs. This can cause Pelvic Congestion Syndrome in Women and Vericocele Veins in Men as well as painful heavy legs.
Do you live in Italy? There is a German doctor Prof Thomas Scholbach that talks extensively about these Compression Syndromes. He is considered by many to be the best doctor in the world at diagnosing and treating these conditions. You could also join a Nutcracker Syndrome and May-Thurner Syndrome groups on Facebook. The members in these groups can tell you what 99.99% of doctors don’t know. They can also give you some great ideas about how to possibly get diagnosed and treated for these poorly understood conditions.
Hope this might help! Feel free to ask any questions.