Aa
Aa
A
A
A
Close
Avatar universal

Possible lyme diagnosis? Mysterious pain

Hello all. I am a little unsure of where to proceed with a recent diagnosis and would love your help.
I've been enduring some leg soreness/heaviness/pain after exercise (especially) for the past couple years.
I consulted a neurologist and other specialists. At the time, the neurologist suspected I had some sort of metabolic myopathy and suggested an open biopsy of my thigh. The biopsy showed no abnormal results. I also got some nerve tests and endless blood labs. All were fine.
This summer I was trying to ignore the achy feeling in my legs but it wouldn't subside. Then, my wrists/forearms started to hurt...thought it was tendonitis or something in that I am an artist.
Eventually I consulted one last doctor who gave me an Igenex test in which I tested positive for Lyme. She thinks everything (including bouts of heavy fatigue I didn't mention) are attached to the untreated Lyme.
My primary care doc thinks I don't have Lyme, and there seems to be some tension surrounding Lyme in the medical field.
All my other Lyme AB tests before this were negative so I think this is were the issue might be...
The treatment is basically detoxing with herbal remedies/whatnot and 6 months antibiotics. I'm totally up for doing it, but should I just trust I have Lyme? Thanks!
3 Responses
Sort by: Helpful Oldest Newest
134578 tn?1642048000
Just an opinion -- if a doctor told me I had Lyme's Disease, I'd take the antibiotics no matter what the general practitioner thought.
Helpful - 0
Avatar universal
Hey jcard, you must be the same person as jmc...... Did you find a solution to this problem? Was it Lyme's? I am asking because I have similar issues and no solution.
Helpful - 0
1 Comments
Make sure you find a LLMD (Lyme Literate Medical Doctor) as most other doctors won’t do the right tests to come up with a Lyme diagnosis.   You can search online for LLMD, then narrow it down to your own area.  
Avatar universal
Lyme is very hard to diagnose.  Some people go years before getting a correct diagnosis.  In this case, where you have a conflict, I would ask, were either of the docs specialists in diagnosing and treating Lyme?  Your primary care doc isn't a specialist in anything, he's by definition a generalist, and you don't mention the other doc, but when you get a conflict it's not a bad idea to see a third doc and one who really specializes in what you think you might have.  
Helpful - 0
Have an Answer?

You are reading content posted in the Undiagnosed Symptoms Community

Top General Health Answerers
363281 tn?1643235611
Nelson, New Zealand
1756321 tn?1547095325
Queensland, Australia
19694731 tn?1482849837
AL
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Discharge often isn't normal, and could mean an infection or an STD.
In this unique and fascinating report from Missouri Medicine, world-renowned expert Dr. Raymond Moody examines what really happens when we almost die.
Think a loved one may be experiencing hearing loss? Here are five warning signs to watch for.
When it comes to your health, timing is everything
We’ve got a crash course on metabolism basics.
Learn what you can do to avoid ski injury and other common winter sports injury.