I have had symptoms for 10+ years, no diagnosis, looking for help.
Approximately 10 years ago I started have sore hips/back when sleeping. Activity helped, classic ankylosing spondylitis symptoms. Numerous tests and drug trials (Enbrel, Humira, Indomethacin) have failed to diagnosis or help. I exercise quite a bit and years ago heavy workouts would lead to intense back and neck pain. Over the past couple years, the pain has lessened in these areas (as I'm unable to strenuously workout) but have spread to my chest. I don't believe lung function is compromised as I am in excellent shape with low resting heart rate. The pain feels like what I imagine asthma feels like: dull, burning, not sharp/stabbing (though once in the middle of the night I had terrible stabbing pain). Physical and emotional stress seem to increase symptoms. Recently tried gabapentin for pain management but didn't help all that much. I have experimented with food triggers and found none. Tramadol is the only thing that offers relief at this time, though I take lose dose infrequently (only when desperate to stop hurting). The pain is constant and seems to get worse without cause. Playing sports leads to inflammation issues, such as bruised toes that take months to heal. Eyes have become inflamed and red, bumps in sclera are common. The pain is always there and I probably don't need to tell anyone on this forum what begins to happen to mental health after years of constant pain.
Looking for advice, related experience, suggestions...thank you much in advance.
SA