Try to manage it as long as you can. Maybe some of it is in your head..I don't know..but believe me sometimes I feel like I am going into a downhill slide too at 32. I just have to will myself to stop it and believe in medicine and if you can hang in there the medical miracles are coming soon..everyday...they can grow new fingers now. Go to www.curingdeath.com for hope.
Take care...keep me posted on how you are doing.
Can't take in all your symptoms so sorry if advice not quite right. It sounds to me that you are a good candidate for tradditional acupuncture. It is one of the best medicines for treating multiples symptoms. It just seems your whole system, body and mind, is struggling with too much. This type of medicine treats symptoms as indications of blocked energy in the body, and with a good practitioner the blockages can be undone and the body can start to do what it does best, i.e. look after itself. Homeopathy works on similar principles, but from personal experience accupuncture has the upper hand. It has been used successfully for over a thousand years and is based in credible medical research. When parts of you start to break down, you can easily become absorbed in everything that goes wrong and stop trusting your own ability to heal. Doctors feed into this anxiety, by convincing you that every problem is their problem, and for them to treat or dismiss or whatever. This is nothing to do with your doctors, it is to do with you. People turn to complementary medicine because its founding philosophy is wiser. Practitioners show humility in the superior knowledge of the body. Keep your doctors as you need them, and lose them as you don't. You, like all of us, are built to last. Your entire system breakdown is giving you a message, you need an entire system form of medicine. Modern medicine struggles with this concept. If you are acutely ill, and need urgent drugs or surgery, go to your doctor. Otherwise, in your case, steer clear of them, and find more holistic practitioners. I am biased, I am utterly dependent on pharmacy drugs and doctors, who I despise, and they don't relish my visits either. The day I can break free of their nonsense diagnoses and treatments (I am now dependent on painkillers and partially disabled from their efforts) will be a happy day for me. Get yourself out of their grip while you can, and get the treatment you need from highly qualified alternative doctors (research carefully). I hope you find good health soon.
I won't go into all my history and symptoms but I can relate. It's not in your head. Don't let thoughts like that enter your head. Two things you mentioned stood out. The stones and spasms. Please check out info on www.parathyroid.com. Docs told me for years I've been tested for "everything." I looked back over my records and could find where I was ever tested for my PTH levels. This might account for a lot of your ailments. It's possible that it might account for all of them, but some of the things you mentioned aren't really associated with this disease. You may have more than one thing going on. Please check out the website, it's run by the lead doc on the parathyroid gland. It's very comprehensive and easy to understand. I think it'll help you a lot. Good luck.
This is my first post on here..so forgive me if I am rambling...
In all your conditions...you never once mentioned your diet regimine. Are you eating fruits and veggies? Dairy? Soy? Meat eater? Wheat? Processed foods. Do your docs ever ask? Just curious.
NSAIDs, asparin, antibiotics, pain meds....those rip up your stomach. Thank god for tomato juice, almonds, whole sour dough bread, ginger ale, club soda and alkazelter(which contains aspirin)! My stomach can barely tolerate all the pain meds and 'other' meds my doc has me on. And in a pinch, you could pour a 1/2 c of club soda, lime, bitters, and a pinch of salt for home made alkaseltzer, sans the aspirin.
I have been going thru similar problems(maybe not as severe as yours) and I hope that one of my many docs finds a way to make them stop. I have even been doing mental therapy to treat anxiety from all this health stuff(it is stressful!). It helps relieve stress, making the symptoms less severe. I highly recommend it. I have had many sick relatives that this helped ease pain(from heart problems). Medidation is good too. But, when it is in a controlled environment with a trained expert teaching you how to do it...it is so much easier to relax. :)
Doesn't make it go away, but, def. makes it much easier!
Good luck to you!
Have you seen a Rheumatologist? I really think with all your issues you need to be tested to see if your body is attacking itself. Which it sounds like it definitely is. All of this isn't in your head-pain like you describe doesn't come from no where. I know how you fill. Even people in my family thought I was faking until I was approved for Disability and diagnosed with multi-auto immune issues. I understand the kidney stone issues you speak of-they're hell aren't they. I had three surgeries, 6 lithotripsy's, two hospitalizations and two ER visits due to those lil' bastards. Ahem, excuse the language. I've also lost my gallbladder and promptly developed Gastritis and Ulcerative Colitis. I have to take Aciphex and Cholestyramine to help with the over production of bile. Also, have your Vitamin D levels checked. People who suffer with chronic pain are often found to be deficient. I wish you the best of luck and you are in my prayers.
What happened and why so many? I have been afraid to stop my Allegra D because of sinus infections I get. you said- “Sinus infections became a problem in 2000. Multiple courses of antibiotics didn't kill the terrible infections, so I had my first surgery in 2001. Infections continued, drugs continued, more surgeries (9 all total). “
What do you do or use? you said- “I irrigate 3-5 times daily just to keep my throat myself cleaned out.”
I went to PT and this did wonders for me, BUT later I it flared up again & I have not been able to find another PT as good as the first one. I feel your pain. you said-"Fibromyalgia"
This is kind of creepy to read some else is living the way I was/is. you said- I lost my gall bladder in 2004. I had my gallbladder removed this time too, and was on Lipitor and one other RX and now on some other stomach RX, but later had polyps removed from my stomach. you said- " Ibuprofen was my biggest help, but it got me into trouble with ulcers, so now I take Prevacid to go along with my Lipitor 40mg."
I went to my doctor's fill in (he was out of town) and he said to me you do not need these pain medicines, I said yes I do! He said you need to learn pain management! Boy I wanted to show him my pain management plan for him! He gave me 2 pills, and said deal with it. You know what I was in SOOOO much pain and took one late that night and then I didn't take anymore from that day forward. The next time I saw him I went up to him and shook his hand and thanked him for helping threw my pain management. I took alot of 20 minute hot bathes to get me throught it. Two years ago I was told I have a Left Bundle Branch Block.
I noticed you never mentioned an Endocrinologist on your list of doctors. I just met my doctor and he is also researching why my white count has been high for at least 15 years. No one doctor could explain this. I have to have a ACTH test tomorrow at the Hospital. Checking my adrenal glands. With this endo. we are looking into all relation (Diabetes II, Fibromyalgia, CFS, and my Heart problems) are leading up to Subclinical Hypothyroism and maybe more?
I hope your doing better; I feel your pain, anger, and fatigue. I just found out a year ago I have Subclinical Hypothyroism and was not being treated for this. I got reemed from my GYN, and 3 other doctors who have looked at my chart. So I changed doctors and now I am on Levothyroxine for now, I was feeling wonderful but it only lasted a few days and I have more testing to do before he ups the RX. We are waiting for futher testing before increasing the doses. When I was diagnosed with Diabetes Type II I went to a dietitan and changed my eating habits and mangaged to lose 50lbs with diet and exercise for about 4 years until the thyroid issue.
Good Luck, try to keep a stiff upper lip and I find it helpful for me to slowdown and try to relax the anxiety I am not as tensed.
Wish you well,