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Suspected Endocrine Problem?
Hello-
I'm a 27 yr old single woman and I have had symptoms throughout the last year and a half that no doctor seems to be able to diagnose. The only thing they "know" is it's endocrine based. I've had bouts of dizziness, pins and needles all over my body on a daily basis, problems with memory and cognition (used to have a photographic memory), fatigue that seems to taper as the day goes on, weakness in my muscles, especially my thighs. I've had trouble walking up even small flights of stairs. I've developed the worst acne of my life and have not been able to lose weight no matter how healthy I eat and how much I exercise since age 16. I've steadily been gaining since then albeit slowly. I also have a really puffy face now, abnormally puffy. I also occasionally get optical migraines.
All of the tests I've had were normal with the exception of a 4 point salivary cortisol test, which came back sporadically high and an elevated SED rate @ 35 (Range <20). I had a random MRi of the head done in May of 2011 as I was experiencing numbness and tingling in my arms, legs and face and they suspected I had MS. I tested negative for MS, but I had some "excess fluid" (This is what the ER neurologist told me) on the left hemisphere of my brain. Arachnoid granulations I think. He said this was uncommon but normal (what?) I also apparently have a partially empty sella (this was not mentioned to me, I checked the reports after they gave me a copy) don't know if that matters. Every other test I had came back normal (ekg, chest xray, CBC full panel, sex hormones, etc.) Oh, but my LH levels however were like 3x higher than my FSH levels. Don't know if that's significant.
If anyone has any input or can give me an idea of a kind of doctor to go see, I'd greatly appreciate it. Thanks!
I'm a 27 yr old single woman and I have had symptoms throughout the last year and a half that no doctor seems to be able to diagnose. The only thing they "know" is it's endocrine based. I've had bouts of dizziness, pins and needles all over my body on a daily basis, problems with memory and cognition (used to have a photographic memory), fatigue that seems to taper as the day goes on, weakness in my muscles, especially my thighs. I've had trouble walking up even small flights of stairs. I've developed the worst acne of my life and have not been able to lose weight no matter how healthy I eat and how much I exercise since age 16. I've steadily been gaining since then albeit slowly. I also have a really puffy face now, abnormally puffy. I also occasionally get optical migraines.
All of the tests I've had were normal with the exception of a 4 point salivary cortisol test, which came back sporadically high and an elevated SED rate @ 35 (Range <20). I had a random MRi of the head done in May of 2011 as I was experiencing numbness and tingling in my arms, legs and face and they suspected I had MS. I tested negative for MS, but I had some "excess fluid" (This is what the ER neurologist told me) on the left hemisphere of my brain. Arachnoid granulations I think. He said this was uncommon but normal (what?) I also apparently have a partially empty sella (this was not mentioned to me, I checked the reports after they gave me a copy) don't know if that matters. Every other test I had came back normal (ekg, chest xray, CBC full panel, sex hormones, etc.) Oh, but my LH levels however were like 3x higher than my FSH levels. Don't know if that's significant.
If anyone has any input or can give me an idea of a kind of doctor to go see, I'd greatly appreciate it. Thanks!
Oh I see. I've had CT of the abdomen and pelvis for the last couple years regularly because I'm a cancer survivor. (Hodgkin's Disease). The only abnormality on one scan I had was what my oncologist called a fluid filled sac in my pelvis area that was non-cancerous. The "sac" did not show up on the following CT so I'm not sure what was going on there. My gyno did an ultrasound on me because she suspected PCOS and it was normal. However, that was done like 4-5 months ago, so...I suppose I'll bring these things up to my second opinion. Thanks again.
Your last sentence is possible. You can also request a 24 hour urine cortisol test as well. If that comes back normal, then Cushing's should be considered not a possibility.
Have you had any imaging of your adrenal glands or ovaries?
Get a second opinion for sure.
Have you had any imaging of your adrenal glands or ovaries?
Get a second opinion for sure.
Thank you for the response. I currently have an Endocrinologist but he isn't very available or helpful so I am going to find another. I had a another question but I'm not sure if you would know the answer. My PCP actually had me do a dexamethasone suppression test because she suspected Cushing's too and it came back normal. She didn't do any other tests for Cushing's cause she said that result means I don't have it. I was wondering if you knew if it's possible to have Cushings but to suppress on the dex supp test?
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