My son is 9 and has had swollen lymph nodes that started in his head and neck (side, back, and collarbone area), then moved to his jaw and groin. The first one we noticed in May of this yr. it seemed that the lymph nodes just kept popping out all the time.
In the beginning that was the only real noticible symptom. Then he started to get slight fatigue, now it is much worse. Daily fatigue and bags under his eyes.
He also started to itch on his skin where there is no rash until he broke out into a rash like texture and bleed. He has bumps on his head that itch intensly that they did a biopsy that showed lymphocytes.
After months of doctors and negative lab work, ct's,a bone scan, a skeletal survey, exrays etc..
They have found bone lesions on his pelvis. The oncologist wants to do a bone biopsy right away to find out if all of his symptoms are a rare blood disorder, histiocytosis. Since, he has alot of the symptoms.
She also felt he could have hodgkins, but has decided not to biopsy lymph nodes now. Which I don't agree with. Which I plan on discussing at the next visit.
Right now I am wondering if anyone else has ever experienced the following symptoms for months and what they were finally diagnosed with.
Generalized lymphadenapathy x 6-7 months (no pain in nodes) also none showing internally on CT
Nausua/ stomache pain
Chest palpatations/ pain ( may or may not be related)
Or if your child has been diagnosed with histiocytosis?
Sorry to drag on my first post for so long I guess I kind of rambled. But, my reference base is fairly limited here, so any info will help.
Copyright 1994-2018MedHelp.All rights reserved. MedHelp is a division of Vitals Consumer Services, LLC.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.