If it were me and I had all this happening, I'd probably want a second opinion, yeah. Can't hurt. There are also a lot of ways to try to control migraines before you have to go with something as intrusive as injections, I would think. But as a former migraine sufferer, they don't sound like migraines to me. I know you've been told they are atypical, and I'm no expert and don't really understand what that means. Docs being what they are, it could mean they don't really know and so they often come up with that word, atypical, when they are clueless because they can't find what's going on and they don't see anything on diagnostic tests and the symptoms don't match up to anything. I had a doc who pretty much cured my migraines by telling me to do TM, a form of meditation that was popular with doctors a long time ago. These days I think the one they know about is mindfulness. But migraines, unless they've redefined them, are a vascular headache caused by constriction of blood vessels followed by them opening up, which causes unfortunately the larger ones near the head to open up before the smaller ones at the extremities do, forcing the blood there in a rush that causes the visual disturbances and nausea and God awful headache that most of us know as migraines. Given I saw a lot of doctor time about them before the meditation and I think getting older almost completely cured me of them, your symptoms certainly don't match what I was told about them. There a lot of new drugs today that weren't available then for migraines, and a lot of natural treatments for them as well, and they are usually helped by exercise, eating regularly, eating properly, sleeping regularly, meditation, biofeedback, etc. But if what you are experiencing isn't migraines, none of this is going to help you, is it? Which leads to maybe finding out where the best docs for your problem might be and finding better docs so you're sure. Also, if you truly have celiac, there's a lot of hidden gluten out there in products, and celiac, when it's correctly diagnosed (it's one of those things that are way overdiagnosed in our society but also underdiagnosed at the same time for those few who truly have it). I have known several people who also got migraines, and the headache when it comes is truly hideous, and you seem to describe a headache that you can live with. I might be wrong there, but sounds like that. Again, we're all different, and neurologists are the experts, not me, but they are also unfortunately known for not actually knowing much. Brains and nerves are really hard. Good luck.