I have already seen a number of doctors - so far no one can tell me what's wrong. Now I'm at a point where I don't know what else to do or what other specialist to see.
* Tingling/buzzing in arms and legs
* Some muscle twitching
* Worse when going to bed in the evening, sometimes very strong episodes at night (without medications)
* Sometimes shaking legs after walking, like after a day of skiing
* Almost every single night (~8/10) I wake up with my arms fallen asleep
Development and actions taken:
* About 5 weeks ago I noticed a strong tingling/buzzing in my lower right leg and foot, during that night, it spread to both arms and the other leg. No pain, no numbness. The first symptoms occured around 3 hours after finishing a day of diving in Panama. Both dives were conservative: Dive 1 at 17m max, 10m average, 5m safety stop. Surface interval 2:20h. Dive 2 at 15m max, 10m average, 5m safety stop. No sudden changes in depth or other irregularities occured. No history of DCS or other problems previously.
* Went to a regular hospital: full blood work up, urine, electrolytes, all normal. Recommendation by 2 different doctors was "wait and see".
* Since I suspected DCS, I traveled to Panamy City to see a hyperbaric specialist and was subsequently treated for DCS Type I with 3 HBOT session (1x Navy Table 6 at 5hrs plus an additional 2x 90 min at lesser depths). I was released from the hospital without symptoms, but they started again several hours later.
* The hyperbaric specialist concluded symptoms not related to diving, prescriped Daflon (micronized flavonoids/Hesperidin, to improve blood flow) - this eased the symptoms.
* After getting cleared for flying over a week later, returned to Germany to see my GP. All blood tests and urine normal, including CRP and Creatinine, potassium/electrolytes. Refered to Neurologist
* Neurologist did a nerve conduction velocity test, normal. Requested cerebrial spine MRI, normal. Prescriped Pregabalin, requested to stop taking Daflon.
* GP has no recommendations other than Neurologist.
* Neurologist has no recommendation what steps to take next.
According to every test done, I'm "okay" but the symptoms are consistent, disturbing, and at night, when a strong episode hits, can even cause panic attacks. There is no pain or numbness (other than when the arms wall asleep) but the symptoms are consistens at a low level and stronger symptoms recurring at night.
What should I do next? Who should I talk to?