Years UNDIAGNOSED chronic pain

[Lkn4answers]

Hi, I've been "sick" since December 2010. I am a 32 year old female single parent. My symptoms started with tingling in my legs and every month since my symptoms started my health has gotten worse. I do not have tingling anymore it is full blown pain mostly in my joints and bones. My right side is the worst, my hip gives me a lot of problems. It is predominate in my right leg but does affect both and the pain is also in my wrists, hands, up to my elbows with a lot of activity like typing. The pain is always there but gets worse, like flare ups, a few weeks on a few weeks off. I have daily high fevers that spike and break 3-5 times a day, worse at night. They spike and then I go into drenching sweats. Last week one of my fevers was 104.2 but usually they are 99.9 - 103 I use a cane most of the time that is how much it affects my mobility. I would also get rashes that didn't itch on my chest, belly, shoulders, and back. They are circular, raised, and pink in color. They raise when I get hot. They are not like a donut like ringworm it is a whole circle. They vary in size from the size of a pea to to as big around as the diameter of a highlighter. Sometimes the lymphnodes in my neck get a little swollen but not too often. Also my joints rarely appear swollen but my doctor says they radiate A LOT of heat. My blood work always comes back fine (esr, c reactive protein, rheumatoid factor, WBC, Ana, etc) all fine. Anyone have any suggestions. I'm so sick of being sick and tired all the time. My daughter is 6 and I can't even run after her. I'm scared and I've been to all sorts of specialists. I see my rheumatologist monthly and she's even at a loss. I appreciate any help, thank you!

[Londres70]

Sorry, but my question was for the POSTER, Lkn4answers.  

[gadolina]

Did you read what I wrote about MRI's and CT radiation scans?
MRI metal contrast= Gadolinium,  say no to this for all MRI scans, no matter what body part

CT contrast is radioactive, Technetium w usually iodine, and the CT is radiation , too,  = benign tumors brain, meningiomas,
avoid yearly dental xrays, get the thyroid shield on your neck
CT and dental films are= to thyroid cancers and brain meningiomas
see auntminnie.com and fiercebiotech.com re these articles as well as www rsna org, free registration,  see www epa gov for health effects of technetium aka cardiolite and do not be dehydrated, it'll concentrate, if you vomit in less than an hour with radiation exposure do not dismiss this, and do not let them give you pre meds for radiation scans, sedation.antihistamines or steriods, make sure you pee after these scans and any contrasted scans, which you should SAY NO to CONTRASTS.
Don't let your kids be unattended in the hospitals , they can put contrast agents in foods, drinks, sedate your kid, do late night exams, no consent needed. Be sure you know what type of scan and the RADIATION PEDIATRIC dose , do not allow "adult" radiation doses, no inhaled agents, even the "oxygen" tubing, can allow odorless gases for lung scans, xenon and krypton, really, see radionuclides , you'll see.

[gadolina]

Lyme disease screening with positive results on two ligands, 23 and ? 41, but this means they have to do further testing, any positive result indicating these, needs further workup, you can have antibodies as I do, but I called the CDC to verify if I would have had a recent exposure or if antibodies can last as long as over 30 years when I lived on the East coast and did have tick/flea bites, with flu like symptoms, never treated, but over the years ,esp since 2007, I've had IV antibiotics, enough to kill off most bacteria, except the one pseudomonas , but seems to be "gone" for now.
There are blood tests for almost any condition without the invasive colonoscopies, surgeries, allergy testing. see www.labtestsonline.org.
I was tested for crohn's, h pylori, lyme dis, all  kinds of tests with a few vials of blood. Do get Vit ADEK, B levels checked. Do not self correct these, my zinc level was perfectly normal. Good thing I did not listen to that dumb doctor who did NOT test levels before telling me to "take as much as you want".

[Londres70]

Have you been screened for Lyme's?

[gadolina]

heavy metal tests do not test for gadolinium,
they test for arsenic, mercury, lead,
Gadolinium requisition is obtained free from mayomedicallaboratories.com along with the tissue for skin biopsy and any lab can draw for gadolinium or other metals, using the Royal blue stopper vial. Reds one and others not for metal , the rubber top has zinc, lead, etc. Gad gets into the bones, not surprised with anyone with immune system disorders. I hope you have researched this. Please, I beg of you to say NO to all contrasts, exp metal and radioactive. Save your life.

[Gio77Italy]

I had some of your symptoms, for me some auto-immune reaction followed to some infection I believe.

pain in wrists, fingers, ankles. partial paralysis. lack of memory, difficulty to concentrate. stiffness when typing like I can't always type fast. sometimes the temperature goes up a bit but actually feels like I'm on fire, then it drops to hypothermia most of the time.

my WBC were out of range only a few months after it started then they went back to normal. there was something high in the Complements system.

I suggest to you to check the Complements system if you've checked everything else. other tests that I know are related with your symptoms are MRI brain/spine and spinal tap.

do you have other symptoms? bad coordination, back pain, weak bladder, slight loss of vision or visual field? do you remember anything usual happening before it started? headache, diarrhea?

try getting an appointment with a Neurologist.

[margypops]

environmental allergies ..ask for a heavy metal toxicity test

[babygurl315]

have you had a mri done, have u been checked for cancer cells

[gadolina]

When did you have a contrasted MRI with GADOLINIUM METAL? have you searched this metal, what it does? fda gov blackbox warning on it, they don't say it's metal, I have skin condition with it since last July until now, lies in med records see mayomedicallaboratories or mri side effects which is an atty site, it's NOT RARE,  this is a public disaster that the medical community is covering up by calling it fibromyalgia, allergies, neurosis, depression, chronic fatigue syndrome, though NAC without the L is recommended in Lippincott's Nurses Drug Handbook 2011, not 2012, I checked, it's for pre CT contrast, but professional journals I have about NSF, in which you should have your skin biopsied and check your eGFR and sCR, or estimated glomerular filtration rate(kidney function) and serum creatinine, if you have a basic metabolic panel, the eGFR is usually hidden in paragraph that seems not to apply to you, it does, do not alert the medical staff you know about this,  go to mayomediclaboratories com search G for gadolinium and search about TC 99 nuc waste radioactive tracer with other radio isotopes, such as freq Iodine, glucose for pet scans, you'll see. This is very painful. I had Vit D levels blood, corrected after 2 years, they think this is funny not to correct or watch the pt complain of such cruel bone pain in hips or ribs, like a knife, extreme fatigue, diff walking, balance issues, diff sleeping, muscle aches, nothing helps, I am on Klonopin, and can get off it, I do not have seizures, but sure felt like it could be as well as a stroke, the pain is unbearable, heat pad helped, but I started NAC by Twin Labs as I had so much pain and took a chance that I read it could help for MRI gadolinium as it's a powerful anti oxidant, don't get the one with N acetyl (L) cysteine, no L. Gadolinium makes you sweat, they have the nerve to order more MRI with contrast, they know it accumulates, causes sweat, skin, and internal fibrosis, too, progressive. if you contact an atty without an NSF diagnosis, they will not take your case, but you can read about  it, try finding an atty who will take your case, check with kidney doc who usually refers to derm MD, then you may get atty referral, see burg simpson com in denver, he has mdl cases in Ohio, he will not take my case, I was Rx'd clobetasol steroid cream for skin, take pictures to document this. I'm telling you they all know exactly what this is. they won't treat, cause they want to see the progression of this. I had rope like pains around chest, knife pain in R side for years, it's finally eased up some, I got a TENS unit, which made them mad, because it's heat/electricity, I could barely eat, nausea, hair loss, tooth loss, this metal deposits in the bones. In Chernobyl, the doctors were ordered to misdiagnose people with radiation sickness, as vegetative neurosis and in the US, women were diagnosed with "housewife's syndrome", this was for compensation claims, and in the US fibromyalgia is a sx, not a condition, True Trigger Point Fibromyalgis exists, but does not cause these symptoms.  Have your eGFR, sCR and dsANA for kidney damage as well as antiphospholipid, alk phosphatase may be elevated, part of liver func, but if liver enzymes normal, it's bone related. I know how you feel and you'd better get paper copies of all records, as they will disappear. If you alert them, they will hide paperwork, I guarantee this, it happened to me with Univ of Colorado. I have other major med condition , but nothing like this, death was the only relief, they know it can make you fall, do you have a wide stance, wear flat shoes, trouble with balance, irritable, talkative, impatience, maybe you want to cry? That's what it does to you, try the NAC, it's usually nebulized for tylenol overdoses, it's that powerful on the liver. It's the only thing that helped me and the Vit D correction. When I'm in the sun, the spots come out like little blood blisters, I don't have dermatitis spongititis or eczema. Do not contact Cowper at yale.edu, pathmax.org, has good info, but he must be paid off, guessing, he says only 366 cases, yet if you go to www nyas org 13 Sep e briefing Fourth Annual NSF conference, listen to it, esp see the slides, Ira Krefting, FDA and Jack Gauldie's slides, esp his and listen to Panel 1 comments,  You've got to do this, I'll bet they've hinted to you, I can tell already from your comments above, I got 4 hints,  I fired them last year, too. new derm checked blood levels of gadolinium and skin biopsy, but one skin biopsy was "lost", he told me in private it was not lost, but refunded my out of pocket $, Medicare would cover this /w supplement. now he's denying he said that. I tell everyone, you need to know this.