Genetic diseases don't exist. A genetic defect can lead to a disease, but that's only a probability, not a guarantee, and how high the probability you will get that disease because of the defect depends on the defect involved -- some are highly predictive and some are not. In other words, if you have a disease, it doesn't really matter in most cases if it was caused by a genetic defect or not, you have the disease. The only time it does matter is when it helps to diagnose a condition, such as a genetic defect that leads to an inability to absorb a particular nutrient, but the treatment won't be to fix your genes, it will still be to treat the condition. I would think that any medical information about you belongs to both your practitioner and to you, and a law protects your privacy. But that doesn't necessarily mean there's a written report you can get, but it does mean the doctor has to tell you what your diagnosis is. If you have a disease and a doctor diagnoses it, he has to tell you that, but in your case, it appears no diagnosis was made. Neurologists know very little about the nervous system, so it's not unusual they wouldn't be able to diagnose you even if you did have some problem with the nervous system, but again, if they did determine you did, it would be a crime not to tell you because it would be essentially harming you physically on purpose. But if you want to know what the law is in your state, and what your rights are, you will have to consult a lawyer who specializes in such things, or you might ask your insurance company what your rights are -- they are not easy to pry info from either but sometimes you get lucky. But again, apparently you were told what the medical opinion was, so what exactly is it you want more than that? If you don't trust the results, see a different doctor. But you already did that and he apparently confirmed the first doc. Whatever it is you think you have, a neurologist might have been the wrong professional to see. It might be something else. If it's a mental illness, that isn't really what neurologists do. That's what psychiatrists and psychologists do. I'm just saying, even if you do have a right to see a written opinion assuming there is one, it would match the verbal opinion already given to you, so you would still be where you are, unless you were given some invasive or diagnostic tests in which case you should have been given a report from the lab.
A GP “can” diagnose one with epilepsy and they can also treat epilepsy, however it’s better to have a neuro confirm the diagnosis. Paxiled is right though - there is a lot that’s not known about the brain and nervous system. I’ve known people to be diagnosed with epilepsy when that’s not what they had and I’ve known people who had epilepsy and didn’t get the proper diagnosis/treatment.
It sounds like you might have been diagnosed with epilepsy by one doctor but maybe others, either won’t confirm the diagnosis so you can get treatment or you don’t think that’s an accurate diagnosis and are looking for something different.
Like Paxiled, I sense a lot of anger and/or frustration. I can identify with that because I’m not real crazy about doctors, myself. If you don’t trust the doctors you have, it would be a good idea to find one you do trust.
It’s true that doctors can’t keep reports from you, though they can require you to put requests for them in writing, etc. That said, very few doctors will give patients a copy of their “office notes” which are different from actual test reports and contain the doctor’s observations.
They can’t keep a diagnosis from you, if there is one.
In the United States, HIPAA gives patients the right to obtain copies of all of their medical records. However, there are some exceptions, such as psychotherapy notes.