i said i would update my post when i found out more information, however the post is now closed and i cannot. here is my original post:
"on december 24th of last year, i fainted while standing with very little warning. doctors have failed to reach a diagnosis as to what has caused such debilitating symptoms.
Symptoms that started the day i fainted include
:-50+ separate instances of painless muscle fasciculations daily, single muscles as well as groups of muscles twitch and contract
-petechiae rash, with new crops appearing at least twice a week, usually around my ankles or across my chest
-palpitation, which i had never had before i fainted, including skipped beats and very fast heavy pounding(i am currently taking acebutolol, and i can immediately tell when it starts to wear off because my resting heart rate goes from about 80 to 100+)
-headache of medium to intense severity that is ever present, which is immediately releaved by lying flat, usually starts at the back of the head
-chronically fatigued, yet sleeping well and waking feeling well rested
-noticeable change in vision clarity, often looks like mild static over vision, or greying of vision
-weird nausea, numbness and tingling in upper abdomen
-numbness of hands, feet, scalp, that come and go, no matter if im sitting/ standing/lying down
tests done, fine unless noted:
-holter monitor twice, 48 hours each time
-king of hearts monitor, 2 weeks(one instance of arrhythmia out of 60 transmissions)
-nuclear heart scan
-multiple CT scans of head and chest (nodule on left lobe of thyroid, left lobe of thyroid has been surgically removed)
-MRI of brain and Cspine ("mild c6-7 disc bulge. straightening of the cervical lordosis)-EKGs and ECGs (sinus tachycardia)
-TSH, T3 & t4 tests (before and after i had the lobectomy on 3/27/07, fine now)
-EMG left arm
-complete metabolic panel (old infection of epstein-barr and a vitamin D deficiency, taking prescription vitamin D)
-tilt table test (neurocardiogenic syncope)
-glucose tolerance test (resistant, taking metformin and low glycemic impact diet) "
i was diagnosed with Pure Autonomic Failure, a very rare parkinsons plus disease. my symptoms are being caused by the spontaneous failure of autonomic functions in the body, such as the constriction of blood vessels, the contraction of the stomach and bladder, and many other things. i am being treated with midodrine(vasoconstrictor), fludrocortisone(build blood volume), and fioricet(headaches). i was taken off the beta-blocker because it was making symptoms much worse.
please read original post, and if you have any questions about how i was diagnosed or my treatment, please reply to this post. i hope i've helped someone!
This discussion is related to Symptoms with sudden onset now chronic and worsening