curious

[Jrock25]

i'm new so i don't know how this works but here goes. Question: has anyone heard of this or had similar symptoms? anything will help really. I'm 25 and have a medical condition doctors can't explain. according to my parents it started when i was 2, and i've gone thru it as long as i can remember. when i wake up from deep sleep or woken suddenly, wake from any medication that makes me drowsy or i'm sick (flu bad cold etc.) i have no control over my body(limbs torso,mouth/tongue,neck head,) its like my brain is awake but my body isn't. i jerk contort and flail around like a fish out of water depending on the severity of the episode. i'm fully conscious and aware of myself and surroundings breathing is normal eye sight is normal and internal functions such as bladder etc. is unaffected. it lasts anywhere from a few seconds to a minute . its not everyday but can be. the actions itself are not painful but  my body  is sore after from contorting and running into walls objects or hitting myself or objects. I have been to doctors specialists neurologists and was hospitalized for 3 days at the Phoenix childrens hospital. all tests came back normal and the episode did not occur while i was at the hospital so they believed my mom was faking it for attention..sad but true. according to doctors i was normal like any other person. its not genetic my children have not been affected by it. anyway i'm curious to know if anyone has heard of seen or experienced something similar much more to explain but this is the basics thought opinions suggestions are much appreciated thx

[Jrock25]

i have done some study on epilepsy and i do not have epilepsy. i watched hours of documentary videos of all the types of epilepsy and i don't experience any of the symptoms of any of the many types of seizures. I cried a lot while watching and reading on the subject mostly for the suffering of those inflicted but also because i knew i didn't fit any category of epilepsy. i was hoping to finally have a name to my condition and possibly a treatment. I did however come across something very much like what i have. its so hard to explain what i have unless you see it yourself. the closest thing i can compare my condition to is something called Choreoathetosis its the closest to the movements my body does except mine are more violent doesn't last as long and only happenes when i awake  

[silverfox67]

Gabapentin is an anti-seizure medicine.  But I have neuritis or neuralgia - nerve pain on one side of my head that even a slight breeze will set off.  Perhaps you can convince your doctor to give you a prescription for Neurontin (fancy name for gabapentin) for your "pain".

[Jrock25]

thank you so much i appreciate the advice. i have been to neurologists specialists and have had every test possible with no prevail. its a difficult thing to live with but at least im getting great suggestions and opinions. unfortunately doctors have ruled out epilepsy and i have done numerous sleep studies all with the same conclusion which to my sorrow is i'm "normal" i will however do some research on epilepsy if it is not definitive then mayhaps i shall go back to the specialists and give em a piece of my mind lol thx every1 for all ur opinions and keep em coming

[silverfox67]

I agree with Red-Star that these are epileptic seizures.  Epilepsy is a mysterious disease as the doctors cannot actually pinpoint the area of the brain that is affected.  Why these occur is also a mystery.  Some people get seizures while walking - so they walk into walls or furniture.  (My grandson just falls down wherever he happens to be.  Once he fell to his knees in front of his bed and his Mom thought he was going to pray. Funny - but not.)  These episodes can be treated with anti-seizure meds.  See a neurologist.

[Red_Star]

These seizures can occur within the first hour or so after awakening (early morning seizures).

[Jrock25]

thx for ur reply . but these episodes are not happening in my sleep they happen when i wake up is it the same thing?

[Red_Star]

The majority of patients with nocturnal seizures generally have idiopathic epilepsy. Noctural epilepsy can be treated with anti-convulsant drugs.

The seizures may occur at any time during the sleep cycle but the most frequent times occur within the first or second hour after going off to sleep (early nocturnal seizures), one to two hours before the usual time of wakening (early morning seizures), or within the first hour or so after awakening (early morning seizures).

[Jrock25]

thank you so much i will check it out

[BluCrystal]

I have a link for you that I think is pertinent to your issues.  I hope this is helpful.  Blessings - Blu

http://www.webmd.com/sleep-disorders/guide/sleep-paralysis