help poss dercums any info

[reidys]

hi have been in pain for 15 months now
had lots of tests cameras up and down loads of blood test
gastro mensioned dercums but will not diagnose me with it yet untill finnished testing for everything else
symtoms
fatty lumps appearing all over mainly stomac arms and ribs
mostly very small hard to see but i can feel them everyware
lot of pain prickly stinging itchy no energy appertite poor on and of
also pains in musles back and sides and under ribs
male 43
driving me mad
does this sound like dercums?
also i have read there is nothing to help the pain is this true?

[Magiklady]

A related discussion, Decrums was started.

[Bornsickie]

It has reciently been found that Decrum Disease does not always spare the hands,face and head!
New findings can be found at:

www.Lipomadoc.org

or at:

http://www.dercumsociety.com/research.html

Dr. K. Herbst is currently the leading specialist in Decrum Disease and is the facilitator for both of the above sites.

[Bhupinder Kaur, MD]

Hello,

It surely sounds like Dercums disease.It is a rare disease characterized by multiple painful lipomas that arise in adult life. The fatty tumors are most often located on the trunk and limbs with sparing of the face and hands.MRI may help in diagnosis.Treatment consists of surgery like liposuction and medicines like Lurica, infliximab and methotrexate.I am passing you a link where you can get good information about the disease: http://www.dercumsociety.com/symptoms.html

Hope it helps.Take care and pls do keep me posted if you have any additional queries.Kind regards.

[Bornsickie]

Please see my page. I hope this helps a bit, feel free to contact me at anytime and I can provide you with even more links and infor.