Hi,
I'm living in France and I have almost the same symptoms. In fact oedema when I'm on my bed, and headache, noise in my ears, sweat and dysphagia... as you lot of doctors tested different things and for the moment no response (I'm made RMI, scanner, blood tests, radio etc...). These symptoms have begun in 2003, just oedema, but in may of this year, I lost my sleep with headache, sweat, and oedema. I did not spend one entire night since this month... for the moment the response is that it's not : heriditary angioedema, cushing, tumor in brain, gammapathy, trouble with Kidney, no apnea, nothing with thyroid (I have a thyroidis but blood results are ok) etc... normally may be with new exams (angioscanner, again IRM, heart echography, "deep" blood tests) they will find... hope so.... excuse me in advance for my bad english but it's not my language.... as we say in french "courage" for you
I have already been to several allergists and have been tested for hereditary angioedema. The C4/C1 test was negative and the allergists were unable to determine the source of the edema. I have been tried on synthroid which was not effective. Please advise.
I agree with the referral to an allergist.
Facial swelling can be caused by hereditary angioedema. Blood tests to look for the C4 and C1 inhibitor antigenic levels as well as a C1q level can be discussed with your personal physician.
The next steps would be determined base the values of these levels.
This option can be discussed with your allergist or personal physician.
Followup with your personal physician is essential.
This answer is not intended as and does not substitute for medical advice - the information presented is for patients education only. Please see your personal physician for further evaluation of your individual case.
Kevin, M.D.
www.kevinmd.com