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muscle pain help

9 months ago I was a healthy 45 yr old 9 months pregnant w/ 7th baby. Delivered healthy baby by c-section and landed back in hospital 3 days later with DVT. Put on coumadin to treat DVT. At the same time I noticed an itchy (intense) spot on back of my neck. Several people looked at it and said it looked like a mosquito bite. Thought nothing more of it at the time. About week after DVT was discovered (2 wks after birth) I came down with flu-like symptoms, achiness, fever etc and a bad toothache. Saw my dentist for tooth---sent me to a specailist, put me on Amoxil 500mg for 1 week. Specialist said nothing on xray but felt extraction was indicated. INR from coumadin was high so extraction was delayed but tooth began to feel better after 5 days on antibiotic) Meanwhile muscle pain began. Initially it was in my neck -- felt like stiff neck. Then appeared in my arms -- felt like I had severly overused my muscles. Pains would migrate from upper arms to forearm etc. Then to rib area, then to legs. Also developed pain in lower back, hips and under ribcage that remained and progressed. Currently experiencing migratory muscle pain and constant midsection pain -- bending, lifting, moving hurt. Have seen many specialists and had several blood tests -- all normal or negative --- ANA, rheumatoid factor, CBC, sed rate, lyme antibody, TSH, aldolase, EMG. My PCP has washed her hands of me. Hematologist is stumped and sending me to teaching facility. I believe I might have lyme disease in spite of negative titer. Positive bite history, flu-like symptoms, muscle involvement, joint pain, irregular menstruation, significant hairloss, blurred vision, sometime stabbing headaches that last for brief minutes. PCP says no -- unwilling to try course of Doxycycline but willing to place me on NSAIDS or steroids to treat pain. Anyone have any ideas? Could something from  c-section have caused this reaction? Possibility of lyme? Other tick borne illness? I was very healthy prior to baby's birth---now feel like an 80 yr old woman. Appreciate any input
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500238 tn?1255131214
Lyme disease is often misdiagnosed as MS, fibromyalgia, rheumatoid arthritis, lupus even Alzheimer's.  Your symptoms are very indicative of Lyme disease and currently the only lab that is correctly testing for Lyme is IgeneX.  You need to see the documentary Under Our Skin which is currently on the short list for the Oscars 2010.  It followed Lyme sufferers who not only had been previously CDC positive but some whose tests were initially negative and later turned positive.  They were followed over a four year period on long-term antibiotics and the improvements are astounding.  Lyme disease is currently the biggest medical controversy today.  The book Cure Unknown will not only give you several different patient accounts and their various symptoms but explain why the current testing through the majority of our labs is flawed.  This controversy is coming to a head as more and more people are finding out they they have Lyme disease.  Trust me on this, I tested CDC positive three times through LabCorp and was told it was a false positive.  My sister tested CDC positive through Quest labs in an entirely different state, same symptoms with worse severity in her case, and she was told hers was a false positive.  Both of us are positive through IgeneX labs and being treated by an LLMD, Lyme Literate Medical Doctor.  On every ELISA I have taken, which is five now,  I have never tested negative.  This is how seriously messed up the medical system is in Lyme right now.  The fact that I could be told it is a false positive when I have been tested for every other rheumatological and auto-immune disorder under the sun is appalling.  

Physicians who do want to become Lyme Literate Medical Doctors can be trained through ILADS, International Lyme and Associated Diseases Society.  ILADS.org can provide them with information on training sessions.  If your physician is willing to do this, then that is great.  If not, you need to contact ILADS and ask for the nearest LLMD in your area.  You can also find a checklist of symptoms at the ILADS site under Joseph Burrascano's treatment guidelines.

Antibiotics will help you while at the same time worsening your symptoms during the treatment because of what is called the Jarisch-Herxheimer reaction.  It is the response to the bacteria load dying and releasing toxins in your body.  Your body is not able to clear the toxins quickly enough which can cause, joint aches, muscle pain, ringing in your ears, brain fog, headaches, severe fatigue, etc.  You may not experience all of these symptoms.  The reaction you have is based on bacteria load as well as whether or not the Lyme has penetrated your central nervous system and brain which it can do within 48 hours of being infected.  Fetal transmission of the bacteria Borrelia Burgdorferi is documented as far back as the 80s.  These documents can be found at the National Institutes of Health PubMed site.  This is very important for you to pursue for the sake of you and your children.  There isn't enough knowledge out there about this disease yet, but there are physicians who will treat and there is a cure for the majority of sufferers, including late-stage lyme disease.
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351246 tn?1379682132
MEDICAL PROFESSIONAL
Hi
Welcome to the MedHelp forum!
Well, it can be Lyme’s disease as often the tests are inconclusive. Other possibilities are chronic fatigue syndrome (CFS), fibromyalgia, multiple sclerosis, rheumatoid arthritis (ruled out in your case), lupus, or other autoimmune and neurodegenerative diseases. It is difficult to comment beyond this at this stage. Do consult your doctor to exclude other possibilities.
One other possibility that should be looked into is post partum depression if all other possibilities are excluded. This could happen to you since there has been going on in your life instead of you just enjoying your baby.
Hope this helps. Take care!
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